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  • Publications

    Measuring self-reported cognitive function following TBI: Development of the TBI-QOL executive function and cognition-general concerns item banks

    Study developed, calibrated, and evaluated a new patient-reported outcome measures of cognitive concerns for individuals with traumatic brain injury (TBI). The TBI-QOL Headache Pain Executive Function and TBI-QOL Cognition-General Concerns item banks developed using data collected at five TBI Model Systems rehabilitation centers in the United States from adults with ...
  • TBI Dissemination Plan

    This template is designed to help Model System Centers share resources such as factsheets and videos, along with information events such webinars and lectures. Text in italics and brackets ([ ]) reflects notes to users and should ...
  • Publications

    Measuring self-reported physical function in individuals with TBI: Development of the TBI-QOL mobility and upper extremity item banks and short forms

    Study developed and evaluated the use of computer adaptive tests (CATs) to administer the Mobility and Upper Extremity item banks from the Traumatic Brain Injury Quality of Life (TBI-QOL) measurement system relevant for individuals with traumatic brain injury (TBI). Data were collected at five rehabilitation facilities funded as part of ...
  • Publications

    Minimal clinically important difference for the Rasch neuropsychiatric inventory irritability and aggression scale for traumatic brain injury

    Study determined the minimal clinically important difference (MCID) for a Rasch measure derived from the irritability and aggression subscales of the Neuropsychiatric Inventory (NPI), the Rasch NPI Irritability and Aggression Scale for Traumatic Brain Injury (NPI-TBI-IA). Distribution-based statistical methods were applied to retrospective data to determine candidates for the MCID. ...
  • Publications

    Minimally conscious state “plus”: Diagnostic criteria and relation to functional recovery

    Study investigated the relationship between three language-dependent behaviors (command-following, intelligible verbalization, and intentional communication) and the functional status of patients with disorders of consciousness (DoC). It was hypothesized that patients in minimally conscious state (MCS) who retain behavioral evidence of preserved language function would have similar levels of functional disability, ...
  • Publications

    Neurobehavioral symptoms in U.S. special operations forces in rehabilitation after traumatic brain injury: A TBI model systems study

    Study compared Special Operations Forces (SOF) versus conventional forces (CF) personnel regarding the presence of neurobehavioral symptoms after traumatic brain injury (TBI). Participants were drawn from the Veterans Affairs (VA) TBI Model Systems Cohort, which includes service members and veterans (SM/V) who received inpatient rehabilitation for TBI at one of ...
  • Publications

    Neurocognitive status and return to work after moderate to severe traumatic brain injury

    Study examined the relationship between cognitive status to employment status 1 year after moderate-severe traumatic brain injury (TBI). Three hundred twenty people with moderate-severe TBI, all employed at injury, were enrolled during inpatient rehabilitation in a TBI Model System center and evaluated at 1-year postinjury. Follow-up measures included whether and ...
  • Publications

    Opioid use among individuals with traumatic brain injury: A perfect storm?

    Growing evidence suggests that individuals with traumatic brain injury (TBI) may be uniquely susceptible to opioid misuse and the consequences of opioid use disorder (OUD). Multiple independent risk factors (e.g., high rates of chronic pain, pre- and post-injury substance misuse, injury-related neurobehavioral changes, overprescribing of opioids, and barriers in access ...
  • Publications

    Optimizing outcome assessment in multicenter TBI trials: Perspectives from TRACK-TBI and the TBI endpoints development initiative

    Article presents lessons learned from initiatives aimed at optimizing the validity of outcome assessment in traumatic brain injury (TBI). In stark contrast to the effective trials that have been conducted in other neurological diseases, nearly 30 studies of interventions employed during acute hospital care for TBI have failed to identify ...
  • Publications

    Challenges to the standardization of trauma data collection in burn, traumatic brain injury, spinal cord injury, and other trauma populations: A call for common data elements for acute and longitudinal trauma databases

    Study analyzed the compatibility of several databases to determine the feasibility of linking acute care and longitudinal trauma databases. The data dictionaries of 5 trauma databases were examined to determine the extent of common data collection. Databases included 2 acute care databases (American Burn Association’s National Burn Data Standard and ...
  • Publications

    Participation following inpatient rehabilitation for traumatic disorders of consciousness: A TBI model systems study

    Study determined the level of participation among patients with traumatic brain injury (TBI) between 2005 and 2017 who were admitted to inpatient rehabilitation unable to follow commands and subsequently enrolled in the TBI Model Systems National Database. The Participation Assessment with Recombined Tools-Objective (PART-O) Productivity, Social Relations, and Out and ...
  • Publications

    Paternalism, privacy, and participation: Cell phones on the brain injury rehabilitation unit

    Article discusses the ethical and legal implications of the use of cell phones by patients with brain injury during inpatient rehabilitation. The first author outlines issues in the context of wireless device use in the hospital, and more specifically for those with cognitive impairment. The second author shares a case ...
  • Burn Dissemination Planning Template

    This template is designed to help Model System Centers share resources and information on burn injuries. It includes guidance and examples on developing objectives, identifying target audiences, and thinking about the types of resources and information to disseminate. It also offers dissemination strategies. ...
  • Publications

    Perceived care partner burden at 1-year post-injury and associations with emotional awareness, functioning, and empathy after TBI: A TBI model systems study

    Study examined the impact of emotional awareness, emotional functioning, and empathy among people with traumatic brain injury (TBI) on the burden experienced by care partners of individuals with TBI. Data were collected at four TBI Model Systems centers from 90 dyads (participants with TBI and their care partner) at 1-year ...
  • Publications

    Performance validity assessment using response time on the Warrington recognition memory test

    Study tested the incremental utility of response time (RT) on the Warrington Recognition Memory Test - Words (RMT-W) in classifying bona fide versus feigned traumatic brain injury (TBI). Participants were 173 adults: 55 with moderate-to-severe TBI, 69 healthy comparison adults (HC) instructed to perform their best, and 49 healthy adults ...
  • Publications

    Posttraumatic headache: Classification by symptom-based clinical profiles

    Article reviews the existing schema used to characterize the clinical characteristics of posttraumatic headache, including the International Classification of Headache Disorders. There remain unresolved questions about whether to classify patients based on the extent of brain injury or on clinical symptom profiles. There also remain problematic issues of definition such ...
  • Publications

    Predicting long-term global outcome after traumatic brain injury: Development of a practical prognostic tool using the traumatic brain injury model systems national database

    Study developed decision trees from commonly collected clinical variables to predict Glasgow Outcome Scale (GOS) functional levels at 1, 2, and 5 years after moderate-to-severe closed traumatic brain injury (TBI). Flexible classification tree statistical modeling was used on prospectively collected data from the TBI-Model Systems (TBIMS) inception cohort study. Enrollments ...
  • Publications

    Predicting the trajectory of participation after traumtic brain injury: A longitudinal analysis

    Study identified factors that predict trajectories of participation over the first 5 years after moderate-to-severe traumatic brain injury (TBI). A secondary analysis was conducted of data collected from 1,947 community-dwelling individuals with TBI, 16 years of age or older, enrolled in the TBI Model Systems National Database (TBIMS NDB). The ...
  • Publications

    Predictors of 10-year functional independence trajectories in older adults with traumatic brain injury: A model systems study

    Study used hierarchical linear modeling to examine baseline predictors of functional independence trajectories across 1, 2, 5, and 10 years after traumatic brain injury (TBI) in older adults. Participants were 2,459 individuals aged 60 or older at the time of TBI who were enrolled in the longitudinal TBI Model Systems ...
  • Publications

    Predictors of missed follow-up visits in the national traumatic brain injury model systems cohort study

    Study identified demographic, pre-injury, injury-related, and rehabilitation predictors of loss to follow-up (LTFU) in the Traumatic Brain Injury Model System (TBIMS) National Database at 1, 2, 5, 10, 15, and 20 years after injury. A total of 17,956 TBIMS participants with interview status data available were included if eligible for ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.