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Burn Publications

Publication Year
2021

Contracture severity at hospital discharge in children: A burn model system database study

Study investigated range of motion (ROM) outcomes in pediatric burn survivors and analyzed these outcomes in relation to burn size, injury severity, length of stay (LOS), and age. Data were obtained from the Burn Model System for patients younger than the age of 18 with at least one joint contracture ...
Publication Year
2021

Agreement between proxy‑ and self‑report scores on PROMIS health‑related quality of life domains in pediatric burn survivors: A national institute on disability, independent living, and rehabilitation research burn model system study

Study examined agreement between pediatric burn survivor self- and caregiver proxy-report on multiple Patient Reported Outcomes Measurement Information System (PROMIS) domains and identified factors associated with differences between self- and proxy-reports. Two hundred seventy-four children and their caregivers completed PROMIS measures (physical function, depression, peer relationships, pain interference, and anger) ...
Publication Year
2021

A review of burn symptoms and potential novel neural targets for non-invasive brain stimulation for treatment of burn sequelae

Study reviews the neural circuitry involved in post-burn symptoms and provides a scientific rationale for specific non-invasive brain stimulation (NIBS) targets that can potentially treat these conditions. Burn survivors experience myriad associated symptoms such as pain, pruritus, fatigue, impaired motor strength, post-traumatic stress, depression, anxiety, and sleep disturbance. Many of ...
Publication Year
2021

Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5-12) Profile: A Conceptual Framework

Pediatric burn injuries can alter the trajectory of the survivor's entire life. Patient-centered outcome measures are helpful to assess unique physical and psychosocial needs and long-term recovery. This study aimed to develop a conceptual framework to measure pediatric burn outcomes in survivors aged 5 to 12 years as a part ...
Boston-Harvard Burn Injury Model System
Northwest Regional Burn Model System
Publication Year
2021

Impact of Community-Level Socioeconomic Disparities on Quality of Life After Burn Injury: A Burn Model Systems Database Study

Introduction Individual- and community-level socioeconomic disparities impact overall health and injury incidence, severity, and outcomes. However, the impact of community-level socioeconomic disparities on recovery after burn injury is unknown. We aimed to characterize the association between community-level socioeconomic disparities and health-related quality of life (HRQL) after burn injury. These findings might ...
Northwest Regional Burn Model System
Publication Year
2021

Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool 1-5 Life Impact Burn Recovery Evaluation (LIBRE) Profile

Modern, reliable, and valid outcome measures are essential to understanding the health needs of young children with burn injuries. Burn-specific and age-appropriate legacy assessment tools exist for this population but are hindered by the limitations of existing paper-based instruments. The purpose of this study was to develop item pools comprised ...
Boston-Harvard Burn Injury Model System
Publication Year
2020

Translation and cross-cultural validation of the English young adult burn outcome questionnaire (YABOQ) in Spanish

Study evaluated the cross-cultural validity of a newly developed Spanish version of the Young Adult Burn Outcome Questionnaire (YABOQ), a validated, English-language patient-reported outcome assessment of young adults’ recovery from burn injury. The 48-item instrument assesses burn outcomes across 15 age-relevant domains of health-related quality of life. Secondary data from ...
Publication Year
2020

The impact of electrical injuries on long-term outcomes: A burn model system national database study

Study examined the long-term outcomes of electrical injuries by comparing them to fire/flame injuries. Data from the Burn Model System National Database collected between 1996 and 2015 was examined. Demographic and clinical characteristics for adult burn survivors with electrical and fire/flame injuries were compared. Satisfaction With Life Scale (SWLS), Short ...
Publication Year
2020

The impact of discharge contracture on return to work after burn injury: A burn model system investigation

Study examined the association of extremity contractures with employment after burn injury. Data were obtained from the Burn Model System database for adult patients who were working prior to injury and discharged with and without a contracture in one of the major extremity joints (shoulder, elbow, wrist, hip, knee and ...
Publication Year
2020

The impact of comorbid conditions on long-term patient-reported outcomes from burn survivors

Study evaluated the association between specific comorbidities and long-term, patient-reported health-related quality of life measures after burn injury. A unique dataset of patient-reported outcomes was generated by merging the Harborview Medical Center Trauma Registry and the Burn Model Systems National Database. The merged dataset included 493 adult participants. Demographic data, ...
Publication Year
2020

Sexual activity and romantic relationships after burn injury: A life impact burn recovery evaluation (LIBRE) study

Study examined demographic and clinical characteristics predicting engagement in sexual activity and romantic relationships in a sample of adult burn survivors compared to a general United States sample. Data were obtained from 601 adult burn survivors who participated in field-testing for the calibration of the Life Impact Burn Recovery Evaluation ...
Publication Year
2020

Satisfaction with life over time in people with burn injury: A national institute on disability, independent living, and rehabilitation research burn model system study

Study examined trajectories of satisfaction with life (SWL) of burn survivors over time and how different clinical, demographic, and other characteristics affect the initial level of SWL and changes in SWL over time. Participant data were obtained from the National Institute on Disability, Independent Living, and Rehabilitation Research-funded Burn Model ...
Publication Year
2020

Paucity of clinical practice guidelines for the rehabilitation of burn survivors

Study reviewed clinical practice guidelines (CPGs) for burn injury to assess the extent to which they encourage practices that result in optimal care at all phases of treatment. CPGs provide an efficient route from research to practice because they follow a prescribed, vetted process for evidence collection. A literature search ...
Publication Year
2020

One-year comparison of a community-based exercise program versus a day hospital-based exercise program on quality of life and mental health in severely burned children

Study compared the effects of long-term psychosocial functioning and mental health of a day hospital-based exercise program (DAYEX) versus a community-based exercise program (COMBEX) in severely burned children. Eighteen patients randomized to DAYEX or COMBEX were assessed at intensive care unit discharge and up to 1 year postburn. The Child ...
Publication Year
2020

Measuring the impact of burn injury on the parent-reported health outcomes of children 1 to 5 years: A conceptual framework for development of the preschool life impact burn recovery evaluation profile CAT

Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0–5), this study developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1–5 years). This framework was iteratively refined based on a literature review, focus groups, interviews, and ...
Publication Year
2020

Geographic variation in outcomes after burn injury: A burn model system national database study

Study examined the impact of geography on physical and psychosocial function after burn injury. Data from the Burn Model Systems National Database (1997–2015) were analyzed. Individuals aged 18 years and older who were alive at discharge were included. Physical and psychosocial functions were assessed at 6, 12, and 24 months ...
Publication Year
2020

Factors affecting employment after burn injury in the United States: A burn model system national database investigation

Study investigated the effect of patient and injury characteristics on employment for working-age, adult survivors of burn injury using the multicenter Burn Model System National Longitudinal Database. A total of 967 adult burn survivors with known employment status prior to injury were included in the analysis. The primary outcome was ...
Publication Year
2020

Effects of community-based exercise in adults with severe burns: A randomized controlled trial

Study investigated the efficacy of community-based exercise programs in the rehabilitation of adult patients with burns compared with standard of care (SOC). Forty-five adult patients with at least 30 percent of total body surface area burned were randomized to participate in a community-based exercise program or SOC. The community-based exercise ...
Publication Year
2020

Cognitive behavioral treatment for acute posttrauma distress: A randomized, controlled proof-of-concept study among hospitalized adults with burns

Study evaluated the feasibility of conducting a randomized controlled trial (RCT) of the Safety, Meaning, Activation and Resilience Training (SMART) intervention versus nondirective supportive psychotherapy (NDSP) in an acutely hospitalized adult survivor of burn injury sample. The study also assessed the preliminary effect of SMART on acute stress disorder (ASD), ...
Publication Year
2020

Beyond lessons learned: Establishing longitudinal data collection to improve burn disaster response

The ability to improve disaster response preparedness and processes relies heavily on the highly practical and necessary but flawed concept of “lessons learned”. However, in order to further evaluate preparedness, improve processes for response and properly allocate resources for rehabilitation and recovery after disasters, patient-centric longitudinal assessment measures are needed. ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.