Measuring the impact of burn injury on the parent-reported health outcomes of children 1 to 5 years: A conceptual framework for development of the preschool life impact burn recovery evaluation profile CAT

Model System:

Burn

Reference Type:

Journal article

Accession No.:

J82969

Journal:

Journal of Burn Care And Research (formerly Journal of Burn Care & Rehabilitation)

Year, Volume, Issue, Page(s):

2020 , 41, 1, 84-95

Publication Website:

Abstract:

Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0–5), this study developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1–5 years). This framework was iteratively refined based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. The study reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from the analysis: symptoms, functioning, and family. The symptoms domain describes parents’ perceptions of their child’s pain, skin-related discomfort, and fatigue. The functioning domain describes children’s physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes. The findings from this study will inform the development of the Preschool Life Impact Burn Recovery Evaluation Profile computerized adaptive test (CAT), a parent-reported outcome measure evaluating recovery from burns among children 1 to 5 years of age.

Author(s):