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  • Publications

    Getting to inclusion: People with developmental disabilities and the Americans with disabilities act participatory action research consortium

    Article discusses the Americans with Disabilities Act (ADA) Participatory Action Research Consortium (ADA-PARC), which collaborates with ADA centers to fulfill the mission of the ADA: full inclusion, full participation, and equality of opportunity for all people with disabilities. The ADA-PARC project focuses on three primary participation areas: community living, ...
  • Publications

    Global outcome and late seizures after penetrating versus closed traumatic brain injury: A NIDRR TBI model systems study

    Study assessed and compared penetrating traumatic brain injury (TBI) and closed TBI with respect to global outcome and late seizures 2 years after injury. Penetrating TBI consists of TBI accompanied by dural penetration and is usually caused by either projectiles striking the head or the head striking sharp objects. ...
  • Publications

    Global outcome trajectories after TBI among survivors and nonsurvivors: A national institute on disability and rehabilitation research traumatic brain injury model systems study

    Study compared long-term functional outcome trajectories of individuals with traumatic brain injury (TBI) who survive with those who expire more than 5 years after injury, using individual growth curve analysis. Data on the Glasgow Outcome Scale-Extended (GOS-E) and Disability Rating Scale (DRS) were obtained for individuals 16 years and ...
  • Publications

    GRAIDs: A framework for closing the gap in the availability of health promotion programs and interventions for people with disabilities

    Article describes a framework for adapting evidence-based health promotion strategies for people with disabilities. A study illustrates how the framework has been used to adapt the obesity prevention strategies developed by the Centers for Disease Control and Prevention (CDC) for individuals with physical and developmental disabilities. The development of ...
  • Karen Greenwald

    Karen is an experienced clinical research coordinator previously involved in a multi-centered NIH grant with GenIMS (Genetic and Inflammatory Markers of Sepsis) Pneumonia research study in CCM. She completed her BSN at California University of PA and ...
  • Publications

    Group therapy use and its impact on the outcomes of inpatient rehabilitation after traumatic brain injury: Data from traumatic brain injury-practice based evidence project

    Study examined the amount and content of group therapies provided during inpatient rehabilitation for traumatic brain injury (TBI), and assessed the relationship of group therapy with patient, injury, and treatment factors and outcomes. Data were obtained from 2,130 patients admitted to 10 acute inpatient rehabilitation centers as part of ...
  • Publications

    Groupings of persons with traumatic brain injury: A new approach to classifying traumatic brain injury in the post-acute period

    Objective: To (1) identify groups of persons with traumatic brain injury (TBI) who differ on 12 dimensions of cognitive function: cognitive, emotional, and physical symptoms; personal strengths; physical functioning; environmental supports; and performance validity; and (2) describe patterns of differences among the groups on these dimensions and on participation ...
  • Publications

    Headache after traumatic brain injury: A national survey of clinical practices and treatment approaches

    Study investigated current practice patterns and perceptions of treatment issues among clinicians managing headache after traumatic brain injury (TBI), using a 20-item questionnaire developed by the authors. The survey was sent electronically to 1,782 members of the Central Nervous System Council list survey of the American Academy of Physical ...
  • Publications

    Health care professionals and the employment-related needs of cancer survivors

    Study assessed healthcare professionals’ perceptions of the effects of cancer on patients' employment status, levels of knowledge about supports to address these employment-related needs, and respondents' preferred modes for information receipt. Data were collected via an online survey administered to staff that provide nonmedical services to cancer patients in ...
  • Publications

    Health outcome disparities among subgroups of people with disabilities: A scoping review

    This scoping review was conducted to describe recent research that has examined health outcome disparities within populations of people with disabilities. MEDLINE, PsycINFO, and CINAHL databases were searched for relevant articles. Three staff independently reviewed abstracts according to inclusion criteria. Two of the authors then independently extracted data from ...
  • Publications

    Health-related quality of life in caregivers of individuals with traumatic brain injury: Development of a conceptual model

    Study identified aspects of health-related quality of life (HRQOL) that are relevant to caregivers of individuals with traumatic brain injury (TBI) and developed an integrated conceptual framework based on this information. Nine focus groups were conducted with 55 caregivers of individuals with moderate-to-severe TBI to explore the effect that ...
  • Publications

    High fidelity human simulation improves physical therapist student self-efficacy for acute care clinical practice

    Study compare self-efficacy between physical therapist (PT) students who did and did not participate in high-fidelity human simulation (HFHS) training prior to acute care clinical experiences. HFHS has been described as structured student learning experiences with the use of a technologically advanced computerized manikin, mimicking realistic patient care situations. ...
  • Publications

    Hospital-acquired pneumonia is an independent predictor of poor global outcome in severe traumatic brain injury up to 5 years after discharge

    Study examined the significance of hospital-acquired pneumonia (HAP) in the acute setting on outcomes 5 years after traumatic brain injury (TBI) using data from an institutional trauma registry merged with the Traumatic Brain Injury Model Systems outcome data. The primary outcome was Glasgow Outcome Scale-Extended (GOSE) at 1, 2, ...
  • Publications

    Hospital-based health care after traumatic brain injury

    Study investigated trends of hospital-based healthcare utilization among patients admitted to a level I trauma center between January 1, 2006, and June 30, 2014 after experiencing an acute traumatic brain injury (TBI). The medical records of participants were retrospectively reviewed. Outcome measures included the incidence and type of select ...
  • Publications

    How do intensity and duration of rehabilitation services affect outcomes from severe traumatic brain injury? A natural experiment comparing health care delivery systems in 2 developed nations

    Study investigated the effects of inpatient and outpatient treatment intensity on functional and emotional well-being outcomes at 1 year after severe traumatic brain injury (TBI). The outcomes of patients treated in a specialized TBI treatment center in the United States (US) were compared with those of patients in a ...
  • Heather Taylor

    Dr. Taylor is the Director of Spinal Cord Injury and Disability Research (SCIDR) at TIRR Memorial Hermann, and Associate Professor in the Department of PM&R at UTHealth. Dr. Taylor holds a PhD in Counseling Psychology from the ...
  • Publications

    Identifying and understanding the health information experiences and preferences of caregivers of individuals with either traumatic brain injury, spinal cord injury, or burn injury: A qualitative investigation

    Study identified the preferred sources of health information for caregivers supporting individuals with traumatic brain injuries (TBI), spinal cord injuries (SCI), or burn injuries and explored how access to this information could be improved. Thirty-two caregivers participated in semi-structured interviews, which were used in order to develop a more ...
  • Publications

    Identifying and understanding the health information experiences and preferences of individuals with TBI, SCI, and burn injuries

    Study identified preferred sources of health information and services for individuals with traumatic brain injuries (TBI), spinal cord injuries (SCI), and burn injuries and explored how access to this information could be improved. Thirty-three people with injuries participated in semi-structured interviews (13 with TBI, 8 with SCI, and 12 ...
  • Publications

    Identifying depression severity risk factors in persons with traumatic spinal cord injury

    Study examined the relationship among demographic characteristics, health- and injury-related characteristics, and substance misuse across multiple levels of depression severity in 204 people with traumatic spinal cord injury (SCI). Instruments included the Patient Health Questionnaire-9 depression scale, the Alcohol Use Disorders Identification Test (AUDIT), and the Substance Abuse in ...
  • Publications

    Impact of health behaviors and health management on employment after SCI: Psychological health and health management

    Study examined the impact of psychological functioning and health management behaviors on employment from the perspective of individuals with spinal cord injury (SCI) who were employed at least once following injury. Six focus groups were conducted at 2 sites with 44 participants who were at least 10 years post ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.