Model System:

TBI

Reference Type:

Journal

Accession No.:

J76320

Journal:


Journal of Medical Internet Research

Year, Volume, Issue, Page(s):

, 19, 5, e159

Publication Website:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5443912/

Abstract:

Study identified the preferred sources of health information for caregivers supporting individuals with traumatic brain injuries (TBI), spinal cord injuries (SCI), or burn injuries and explored how access to this information could be improved. Thirty-two caregivers participated in semi-structured interviews, which were used in order to develop a more in-depth understanding of these caregivers' information needs. Digital audio recordings of the interviews were used for analysis purposes. These audio recordings were analyzed using a thematic analysis or qualitative content analysis. The results showed that the caregivers endorsed similar behaviors and preferences when seeking and accessing health information. Medical professionals were the preferred source of information, while ease of access made the Internet the most common avenue to obtain information. The challenges faced by participants were frequently a result of limited support. In describing an ideal health system, participants expressed interest in a comprehensive care website offering support network resources, instructive services about the injury and caregiving, and injury-specific materials. According to the participants, an ideal health information system would include a comprehensive care website that offered supportive network resources, instructive services about the injury and caregiving, and materials specific to the type of patient injury.

Author(s):


Coffey, Nathan T., Cassese, James, Cai, Xinsheng, Garfinkel, Steven, Patel, Drasti, Jones, Rebecca, Shaewitz, Dahlia, Weinstein, Ali A.

Participating Centers: