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  • Publications

    The factor structure of the disability rating scale in individuals with traumatic brain injury

    Study examined the factor structure of the Disability Rating Scale (DRS) and the predictive validity of the scale’s factors among individuals with traumatic brain injury (TBI). The DRS is a measure used in brain injury rehabilitation that generates a total score indicating level of disability. Five hundred eight individuals with ...
  • Publications

    The impact of opioid medications on sleep architecture and nocturnal respiration during acute recovery from moderate to severe traumatic brain injury: A TBI model systems study

    Study identified patient and clinical characteristics associated with receipt of opioid medications and examined differences in sleep quality, architecture, and sleep-related respiration between those receiving and not receiving opioid medications during inpatient rehabilitation following traumatic brain injury (TBI). Participants were 248 patients undergoing inpatient rehabilitation care following moderate-to-severe TBI, who ...
  • Publications

    The long road to in vivo diagnosis of chronic traumatic encephalopathy

    This scientific commentary refers study findings presented in an article by Iverson and Gardner (https://doi.org/10.1093/braincomms/fcab001), which suggests a potentially high rate for misdiagnosing traumatic encephalopathy syndrome (TES) among adults in the United States (US). Chronic traumatic encephalopathy (CTE), a progressive brain condition that's thought to be caused by repeated blows ...
  • Publications

    The neuroethics of disorders of consciousness: A brief history of evolving ideas

    Article reviews the current taxonomy of disorders of consciousness (DOC) and propose an approach to identifying and critically evaluating actionable neuroethical issues that are frequently encountered in research and clinical care for people with DOC. The authors begin with an overview of the field of neuroethics: what it is, its ...
  • Publications

    The social network -- using social media to support individuals with traumatic brain injury participating in a pilot study weight-loss program

    Study implemented social media (Facebook group) as a tool for engagement among individuals with traumatic brain injury (TBI) enrolled in a weight-loss intervention. Participants were individuals with TBI enrolled in a community-based weight-loss program who were provided the opportunity to join the closed Facebook group led by the research team ...
  • Publications

    Therapeutic interventions in patients with prolonged disorders of consciousness

    This review article critically evaluates the available therapeutic options for patients with prolonged disorders of consciousness (more than 28 days) that have been studied in the past 6 years. The authors discuss pharmacological and nonpharmacological interventions with the strongest evidence and for which robust randomized controlled trials (RCTs) have been ...
  • Publications

    Thirty years of national institute on disability, independent living, and rehabilitation research traumatic brain injury model systems center research -- an update

    This article provides an update on the history and activities of the Traumatic Brain Injury Model Systems Center (TBIMSC) research program since 2010 when a similar article was published. The TBIMSC program was established by the National Institute on Disability, Independent Living, and Rehabilitation Research in 1987, with the goal ...
  • Writing and Testing Plain Language

    This tool presents the principles of plain language writing and how to test the grade level at which text is written. Consumers have a better chance of understanding health and scientific content if it’s written in plain language. This tool is written using the principles of plain language writing. Topics ...
  • Publications

    Time and money: Exploring enhancements to performance validity research designs

    Study examined the effect of preparation time and financial incentives on healthy adults' ability to simulate traumatic brain injury (TBI) during neuropsychological evaluation. It was hypothesized that providing both preparation time and incentive would result in poorer PVT classification accuracies and a more believable (i.e., successful) simulation than observed for ...
  • Publications

    Traumatic brain injury as a risk factor for Alzheimer's disease: Current knowledge and future directions

    This scoping review summarizes clinical research from the past 10 years that evaluates the relationship between traumatic brain injury (TBI) and Alzheimer’s disease. This review identified five studies that found increased risk for dementia after TBI, two studies that found no increased risk, and four studies that found a relationship ...
  • Publications

    Traumatic brain injury: An enduring challenge

    Article reviews findings from recent research that provide a foundation to better understand the complications of traumatic brain injury (TBI). The outcomes of TBI can vary widely from no lasting effects to devastating and persistent consequences. Detailed understanding of the sequelae of TBI has been limited by the heterogeneity of ...
  • Publications

    Traumatic brain injury: Integrated approaches to improve prevention, clinical care, and research

    Article presents strategies for improvements in clinical care and establishes research priorities in traumatic brain injury (TBI). It aims to provide a foundation for implementation of policy measures that minimize the risk of TBI and maximize chances of recovery when it does happen. The authors highlight priorities and provides ...
  • Publications

    TWIST: Treatment with sumatriptan for TBI headache (Sumatriptan as treatment for moderate to severe post-traumatic headache)

    Document presents the protocol for a study that will investigate whether treatment with sumatriptan is effective in treating post-traumatic headache pain in people who have had a mild, moderate, or severe traumatic brain injury (TBI). The sample will include 40 subjects who will be recruited from patients discharged from the ...
  • Publications

    Pain across traumatic injury groups: A national institute on disability, independent living, and rehabilitation research model systems study

    Study described pain intensity and interference at baseline and 1 year post injury in burn, traumatic brain injury (TBI), and spinal cord injury (SCI) survivors compared to each other and with the general population (GP). It also evaluated the feasibility and utility of custom Patient Reported Outcomes Measurement Information System ...
  • Publications

    Validating multi-dimensional outcome assessment using the traumatic brain injury common data elements: An analysis of the TRACK-TBI pilot study sample

    Study examined the convergence of disability ratings across a multidimensional set of traumatic brain injury (TBI) outcome domains. Data were obtained from the Transforming Research and Clinical Knowledge in Traumatic Brain Injury (TRACK-TBI) Pilot study, which collected several common data elements (CDEs) recommended by the TBI CDE Workgroup. Patients presenting ...
  • Publications

    Psychometric properties of the satisfaction with life scale in people with traumatic brain, spinal cord, or burn injury: A national institute on disability, independent living, and rehabilitation research model system study

    Study evaluated the measurement properties of the Satisfaction With Life Scale (SWLS), developed to quantify global quality of life and satisfaction. SWLS data were obtained from 17,897 individuals enrolled in the Model Systems funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). They included 8,566 people ...
  • Publications

    Utility of functional metrics assessed during acute care on hospital outcomes: A systematic review

    Study reviewed the literature examining the association between acute hospital physical function and various hospital outcomes and healthcare utilization. A search of the MEDLINE database was performed using term that included acute functional outcomes and frailty outcomes. Studies up to September 2017 were selected if they were in English and ...
  • Publications

    Variation in 30-day readmission rates from inpatient rehabilitation facilities to acute care hospitals

    Study examined the rate of readmission from inpatient rehabilitation facilities (IRFs) to acute care hospitals (ACHs) during the first 30 days of rehabilitation stay, the variation in 30-day readmission rate across IRFs, and the extent that patient and facility characteristics contribute to this variation. Adult IRF discharges from 944 IRFs ...
  • Practical Guide to Developing Video

    Video is a powerful medium to communicate, inform, and instruct. This tool outlines MSKTC’s approach to developing videos. MSKTC collaborates with Model System researchers and consumers to develop videos that convey real-life experiences of how people with ...
  • Meet Ambassador Jesse Jaynes

    Jesse’s Burn Injury Journey Jesse spent a summer in college working at a campsite for children and adults with challenging illnesses and special needs. One of the camps that Jesse worked with was a camp for children recovering from burn injuries. She loved working with the campers and was interested in ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.