Thirty years of national institute on disability, independent living, and rehabilitation research traumatic brain injury model systems center research -- an update

Model System:

TBI

Reference Type:

Journal article

Accession No.:

J80003

Journal:

Journal of Head Trauma Rehabilitation

Year, Volume, Issue, Page(s):

2018 , 33, 6, 363-374

Publication Website:

Abstract:

This article provides an update on the history and activities of the Traumatic Brain Injury Model Systems Center (TBIMSC) research program since 2010 when a similar article was published. The TBIMSC program was established by the National Institute on Disability, Independent Living, and Rehabilitation Research in 1987, with the goal of conducting research to improve the care and outcomes for individuals with moderate-to-severe traumatic brain injury (TBI). On the occasion of the 30th anniversary of the TBIMSC program, this article highlights many of the accomplishments of this well-established, multicenter TBI research consortium. It includes: (1) discussion of TBIMSC program management and infrastructure; (2) details on the management, data quality, access, use, and knowledge translation of the TBIMSC National Database, with more than 16 000 participants with follow-up out to 25 years postinjury to date; (3) an overview of the TBIMSC site-specific studies and collaborative module research; (4) highlights of several collaborative initiatives between the TBIMSCs and other federal, advocacy, and research stakeholders; (5) an overview of the vast knowledge translation occurring through the TBIMSC program; and (6) discussion of issues that impact on the data collection methods for and contents of the TBIMSC National Database.

Author(s):

Dijkers, Marcel P.|Marwitz, Jennifer H.|Harrison-Felix, Cynthia|