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  • Publications

    Improving well-being after traumatic brain injury through volunteering: A randomized controlled trial

    Objective: To evaluate the efficacy of a novel intervention facilitating volunteer activity to improve well-being in individuals with traumatic brain injury (TBI). Design: Randomized two-arm controlled trial, with a wait-list control condition (ClinicalTrials.gov NCT#01728350). Setting: Community-based setting. Participants: Seventy-four community-dwelling individuals at least 1-year post TBI, who had completed ...
  • Publications

    Voting is my Superpower! Voting tips for people living with disabilities

    No abstract available. Full text available in link.
  • Publications

    A randomized controlled trial of acceptance and commitment therapy for psychological distress among persons with traumatic brain injury

    Psychological distress is common in persons with traumatic brain injury (TBI) but treatments remain underdeveloped. This randomized controlled trial of Acceptance and Commitment Therapy (ACT) was designed to address this gap. Ninety-three persons with medically-documented complicated mild to severe TBI, normal-to-mildly impaired memory, and clinically significant psychological distress in the ...
  • Publications

    Comparison of diagnostic sleep studies in hospitalized neurorehabilitation patients with moderate to severe traumatic brain injury

    Background: OSA is prevalent during a time of critical neural repair after traumatic brain injury (TBI). The diagnostic utility of existing sleep studies is needed to inform clinical management during acute recovery from TBI. Research Question: This study aimed to evaluate the non-inferiority and diagnostic accuracy of a portable level 3 ...
  • Publications

    Development and calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks and short forms

    Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form ...
  • Publications

    Development and psychometric characteristics of the TBI-QOL Independence item bank and short form and the TBI-QOL Asking for Help scale

    Objective: To develop an item response theory (IRT)-calibrated, patient-reported outcome measure of subjective independence for individuals with traumatic brain injury (TBI). Design: Large-scale item calibration field testing; confirmatory factor analysis (CFA) and graded response model IRT analyses. Setting: Five TBI Model System centers across the United States. Participants: Adults ...
  • Publications

    Development of composite scores for the TBI-QOL

    Objective: To develop a set of composite scores that can be used for interpreting quality of life (QOL) after traumatic brain injury (TBI) using 9 of the patient-reported outcomes measures from the Traumatic Brain Injury Quality of Life (TBI-QOL) measurement system. Design: Participants completed 20 item banks from the ...
  • Publications

    Patterns of cognitive test scores and symptom complaints in persons with TBI who failed performance validity testing

    Objective: To determine clinically meaningful subgroups of persons with traumatic brain injury (TBI) who have failed performance validity testing. Method: Study participants were selected from a cohort of 674 participants with definitive medical evidence of TBI. Participants were those who failed performance validity testing (the Word Memory Test, using the standard ...
  • Publications

    Responsiveness of the Traumatic Brain Injury - Quality of Life (TBI-QOL) measurement system

    Objective: To assess the responsiveness of the Traumatic Brain InjuryeQuality of Life (TBI-QOL) measurement system. Design: Participants completed the 20 TBI-QOL item banks and the Participation Assessment with Recombined ToolseObjective (PART-O) Productivity Subscale at baseline and 6-month follow-up assessments. Participants were categorized into 4 groups (increased productivity, unchanged productivity, ...
  • Colleen M. Ryan

    Dr. Ryan is a general surgeon with thirty years of clinical experience caring for adults and children following burn injuries. She is the Director of Clinical Care at the Boston-Harvard Burn Injury Model System as well as ...
  • Publications

    The intersection of lifetime history of traumatic brain injury and the opioid epidemic

    Full article available at link.
  • Publications

    Care partner problem solving training (CP-PST) for care partners of adults with traumatic brain injury during inpatient rehabilitation: Study protocol for a multisite, randomized, single-blind clinical feasibility trial

    Traumatic brain injury (TBI) often leads to immediate and chronic functional impairments that affect care partners, or those providing physical and/or emotional support to individuals with TBI. The many challenges associated with being a care partner often lead to caregiver burden and can compromise the well-being and quality of life ...
  • Publications

    Scoping review of clinical rehabilitation research pertaining to traumatic brain injury: 1990-2016

    Introduction: Understanding the impact of disease on function and improving functional outcomes is an important goal of rehabilitation. This scoping review analyzes 25 years of published traumatic brain injury (TBI) clinical rehabilitation research (CRR) to determine the frequency with which function is a research goal. Methods: The review protocol was prepared ...
  • Publications

    Can a couples' intervention reduce unmet needs and caregiver burden after brain injury?

    Objective: To examine the effectiveness of the Therapeutic Couples Intervention (TCI) on caregiver needs and burden after brain injury. Research method: Individuals with brain injury and their intimate partners/caregivers (n = 75) participated in a 2-arm, parallel, randomized trial with a waitlist control. The TCI consisted of 5 2-hr sessions, with ...
  • Publications

    Which behaviours are first to emerge during recovery of consciousness after severe brain injury?

    Background: Early detection of consciousness after severe brain injury is critical for establishing an accurate prognosis and planning appropriate treatment. Objectives: To determine which behavioural signs of consciousness emerge first and to estimate the time course to recovery of consciousness in patients with severe acquired brain injury. Methods: Retrospective observational study using ...
  • Publications

    Post-traumatic confusional state: A case definition and diagnostic criteria

    In response to the need to better define the natural history of emerging consciousness after traumatic brain injury and to better describe the characteristics of the condition commonly labeled posttraumatic amnesia, a case definition and diagnostic criteria for the posttraumatic confusional state (PTCS) were developed. This project was completed by ...
  • Publications

    Groupings of persons with traumatic brain injury: A new approach to classifying traumatic brain injury in the post-acute period

    Study identified groups of people with traumatic brain injury (TBI) who differ on 12 dimensions of experience or functioning. These dimensions include: (1) memory, (2) cognitive processing speed, (3) verbal fluency, (4) self-reported cognitive symptoms, (5) independence and self-esteem, (6) resilience, (7) emotional distress, (8) postconcussive symptoms, (9) physical ...
  • Publications

    Outcomes 1 and 2 years after moderate to severe traumatic brain injury: An international comparative study

    Objective: This study compared traumatic brain injury (TBI) outcomes from 2 cohorts: the National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems (TBIMS) in the United States and Longitudinal Head Injury Outcome Study conducted in Victoria, Australia, by the Monash Epworth Rehabilitation Research Centre (MERRC). Design: ...
  • Publications

    Evidence-Based Cognitive Rehabilitation: Systematic Review of the Literature From 2009 Through 2014

  • Publications

    Disorders of Consciousness due to Traumatic Brain Injury: Functional Status Ten Years Post-Injury

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.