Journal:Archives of Physical Medicine and Rehabilitation
Year, Volume, Issue, Page(s):, 101, 1, P20-32
Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form and computer adaptive test (CAT) versions, and report information to facilitate research and clinical applications.
Design: We used a mixed methods design to develop and evaluate Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities items. Focus groups defined the constructs, cognitive interviews guided item revisions, and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics.
Setting: Five TBI Model Systems centers in the United States.
Participants: Community-dwelling adults with TBI (N=556).
Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks.
Results: Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction with Social Roles and Activities items demonstrated good psychometric properties. Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL metric, and scores are comparable with the general population. All CAT and short forms correlated highly (>0.90) with the full item banks and demonstrate comparable construct coverage and measurement error.
Conclusion: The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and demonstrate excellent measurement properties in individuals with TBI. These measures, particularly in CAT or short form format, are suitable for efficient and precise measurement of social outcomes in clinical and research applications.
Full article available at link.
Author(s):Allen W. Heinemann, PhD; Pamela A. Kisala, MA; Aaron J. Boulton, PhD; Mark Sherer, PhD; Angelle M. Sander, PhD; Nancy Chiaravalloti, PhD; Tamara Bushnik, PhD; Robin Hanks, PhD; Elliot Roth, PhD; David S. Tulsky, PhD
- Midwest Regional Spinal Cord Injury Care System
- TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
- Northern New Jersey Traumatic Brain Injury System
- Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
- Southeastern Michigan Traumatic Brain Injury System