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There are many myths about adaptation to SCI, such as the belief everyone must go through a grief process or everyone gets depressed. We hope to improve how we assist people with SCI by gathering information on what people experience after SCI, what treatments they receive and how they ...

Outcome measures that are sensitive to motor changes that would normally occur over time in SCI, in addition to changes in strength that would occur as a result of a clinical intervention, do not currently exist. The lack of valid outcome measures for time-dependent SCI recovery has been especially evident ...

The purpose of this module is to collect neurological data on patients with traumatic SCI in order to (1) contribute to knowledge on usual recovery and (2) evaluate alternative examination elements and classification schema in order to improve reliability and predictive validity.

The objective of this project is to investigate the equity and quality of assistive technology (AT) provision and outcomes for individuals with spinal cord injury (SCI). The aims of this study are: 1) Collect descriptive data on AT used by individuals with SCI including wheelchair ...

The prevalence of overweight/obesity as a cardiometabolic disease (CMD) risk determinant following SCI is daunting, ranging from 55% to 83% of the population. A significant shift in body composition within the first year after injury is ultimately associated with diminished work capacity, musculoskeletal decline, pain, ...

The existence of integrated trauma systems and trauma registries has proved to be essential in improving trauma-related survival rates, with an overall reduction in risk of death of up to 25% when care was provided at a trauma center. The reduction in mortality is attributed to improved and effective triage ...

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The goal of this project is to evaluate the utility of adding a variable to the TBI Model Systems National Dataset that would identify the geographic location of a persons residence at follow-up. With this identifier, researchers could access a wide array of information about the environment and tie ...

Purpose: The purpose of this project is to determine the frequency, type and severity of changes in sexual functioning associated with Traumatic Brain Injury (TBI). Unique contributions of the current study will include: Recruitment of a large, prospective sample; Use of a standardized measure of sexual functioning (Derogatis Interview ...

Overview: This is a study, coordinated and led by Mount Sinai, in which four of the other model system centers are collaborating (see above). It is a longitudinal study in the five years following TBI of the relationship between insomnia and PTBIF and the role of moderating and mediating ...

Animal studies have suggested that statin drugs may have neuroprotective effects. Since these are among the few drugs that may be on board at the time of a TBI, this effect might be seen in humans. This study explores the feasibility of conducting an observational study of statin-exposed vs. ...

This project aims to develop a more sensitive measure for the continued study of functional changes between one and ten years after traumatic brain injury (TBI). We plan to conduct IRT and factor analytic studies of potential item variables. If a viable measure can be developed, differential item functioning ...

This research study is a collaboration between RRTBIMS, Kessler Foundation (West Orange, NJ) and TIRR Memorial Hermann (Houston, TX). The two central aims of the study are to: further establish the psychometric properties of the TBI-QOL CATs by examining their sensitivity and responsiveness to clinically meaningful changes across time ...

This module project leverages the LIBRE Profile and the BMS National Database to further understand clinical determinants of social outcomes of burn injury. The LIBRE Profile Social Activities and Social Interactions scales will be co-administered with BMS National Database questionnaire at 24 months. Analyses will assess the importance of ...

Our overarching hypothesis for this collaborative project is that preexisting genetic factors influence physical and psychological recovery after burn injury. We will address this with two aims: Specific Aim 1: The Burn Model System (BMS) Project Directors together with the BMS National Data & Statistical Center will: a) establish standard operating ...

This study is a multi-site observational study to gain a greater understanding of the impact of alexithymia on variables beyond the intervention study. Results are expected to directly improve clinical care, outcomes, and quality of life for people with TBI and alexithymia.

Using data from the National TBI Model System Database, this study will evaluate various procedures for creating crosswalks between the FIM™ and the Continuity Assessment Record and Evaluation (CARE) Item Set, as well as evaluate the existing crosswalk between the Patient Health Questionnaire (PHQ-9) and the Traumatic Brain Injury Quality-of-Life ...

The multi-center study aims to address the following questions. What is the trajectory of caregiver resilience over the first two years postinjury? Does resilience change over time for some caregivers? If yes, what patient (functional status, resilience, emotional distress) and caregiver (perceived burden, needs, time spent caring for the ...