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Model Systems Knowledge Translation 
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  2. Living with Traumatic Brain Injury (TBI)
 
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TBI Publications

Publication Year
2018

Pre-injury psychosocial and demographic predictors of long-term functional outcomes post-TBI

Study examined whether pre-injury psychosocial and demographic factors differentially influence long-term functional outcomes following traumatic brain injury (TBI). Participants were 149 patients, ages 16–75, who sustained a mild complicated, moderate or severe TBI, were enrolled in a TBI Model System center, and had functional outcome data five to 15 ...
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2018

Patient perspectives on quality and access to healthcare after brain injury

Study explored brain injury (BI) survivors’ experiences in accessing and utilizing health care. Forty-four community-dwelling adults with BI participated in focus groups conducted at clinical research centers in Seattle, Washington and New York, New York. Participants were asked open-ended questions about their experiences with health care in the community ...
University of Washington Traumatic Brain Injury Model System (UW TBIMS)
New York Traumatic Brain Injury Model System
Publication Year
2018

Factor analysis of the everyday memory questionnaire in persons with traumatic brain injury

Study examined the factor structure of the Everyday Memory Questionnaire (EMQ) in people with traumatic brain injury (TBI). A secondary analysis was conducted of baseline data from two clinical trials targeting memory impairment after TBI. Participants were 169 individuals with complicated mild, moderate, or severe TBI at an average ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2018

Epidemiology of comorbid conditions among adults 50 years and older with traumatic brain injury

Study determined the comorbidities and complications that most commonly co-occur in adults aged 50 years and older with traumatic brain injury (TBI). Data were obtained from 2,134 adults 50 years of age or older with moderate/severe TBI enrolled in the TBI-Model Systems (TBI-MS) study from 2007 to 2014. International ...
New York Traumatic Brain Injury Model System
University of Pittsburgh Model Center for Traumatic Brain Injury
North Texas Traumatic Brain Injury Model System
South Florida Traumatic Brain Injury Model System
Publication Year
2018

Changes in alcohol use after the onset of spinal cord injury

Study examined the rate of alcohol consumption and binge drinking among recently injured individuals with spinal cord injury (SCI), compared these rates to data from the general population, and identified changes in alcohol use over time. Self-reported assessments were completed during inpatient rehabilitation and at follow-up approximately 17 months ...
Publication Year
2018

Antispasmodic medications may be associated with reduced recovery during inpatient rehabilitation after traumatic spinal cord injury

Study investigated whether antispasmodic medications are associated with neurological and functional outcomes during the first year after traumatic spinal cord injury (SCI). A retrospective analysis was conducted of data collected prospectively from six inpatient SCI rehabilitation centers. Baseline-adjusted outcomes at discharge and one-year follow-up were compared using analysis of ...
Publication Year
2018

"Going the extra mile": Disclosure, accommodation, and stigma management among working women with disabilities

Study examined women’s experiences of disability disclosure and accommodation in the workplace. Seven focus groups were conducted with 42 women with disabilities. The findings revealed that women with disabilities face intentional and unintentional structural discrimination and must weigh the pros and cons of disclosure and navigate devaluation threats in ...
Publication Year
2018

Internet and social media use after traumatic brain injury: A traumatic brain injury model systems study

Study examined Internet and social media use among adults with moderate-to-severe traumatic brain injury (TBI) and compared demographic and socioeconomic factors associated with Internet use between those with and without TBI. Participants were drawn from 10 TBI Model Systems centers. A total of 337 participants with moderate-to-severe TBI completed ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Rocky Mountain Regional Brain Injury System
Moss Traumatic Brain Injury Model System
Spaulding-Harvard Traumatic Brain Injury Model System
Ohio Regional Traumatic Brain Injury Model System
University of Pittsburgh Model Center for Traumatic Brain Injury
UAB Traumatic Brain Injury Model System
Publication Year
2017

Early detection of consciousness in patients with acute severe traumatic brain injury

Spaulding-Harvard Traumatic Brain Injury Model System
Publication Year
2017

Suicide and trumatic brain injury: A reveiw by clinical researchers from the NIDILRR and Veterans Health Admistration TBI MS

UAB Traumatic Brain Injury Model System
Publication Year
2017

Functional Networks in Disorders of Consciousness

Spaulding-Harvard Traumatic Brain Injury Model System
Publication Year
2017

Functional MRI Motor Imagery Tasks to Detect Command Following in Traumatic Disorders of Consciousness

Spaulding-Harvard Traumatic Brain Injury Model System
Publication Year
2017

Groupings of persons with traumatic brain injury: A new approach to classifying traumatic brain injury in the post-acute period

Study identified groups of people with traumatic brain injury (TBI) who differ on 12 dimensions of experience or functioning. These dimensions include: (1) memory, (2) cognitive processing speed, (3) verbal fluency, (4) self-reported cognitive symptoms, (5) independence and self-esteem, (6) resilience, (7) emotional distress, (8) postconcussive symptoms, (9) physical ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2017

Neuropsychological test validity in Veterans presenting with subjective complaints of 'very severe' cognitive symptoms following mild traumatic brain injury

OBJECTIVE: This study explored the utility of combining data from measures of performance validity and symptom validity among Veterans undergoing neuropsychological evaluation for mild traumatic brain injury (mTBI). BACKGROUND: Persistent cognitive impairments following mTBI are often reported by returning combat veterans. However, objectively-measured cognitive deficits are not common among ...
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2017

Groupings of Persons With Traumatic Brain Injury: A New Approach to Classifying Traumatic Brain Injury in the Post-Acute Period

OBJECTIVE: To (1) identify groups of persons with traumatic brain injury (TBI) who differ on 12 dimensions of cognitive function: cognitive, emotional, and physical symptoms; personal strengths; physical functioning; environmental supports; and performance validity; and (2) describe patterns of differences among the groups on these dimensions and on participation ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
North Texas Traumatic Brain Injury Model System
Southeastern Michigan Traumatic Brain Injury System
UAB Traumatic Brain Injury Model System
Northern New Jersey Traumatic Brain Injury System
Publication Year
2017

Role of resilience in the rehabilitation of adults with acquired brain injury

The goals of this review paper are to present an overview of the literature on resilience in adults with ABI, to describe approaches to measuring resilience in clinical practice and to discuss practical suggestions for promoting resilience in rehabilitation of adults with ABI.
Southeastern Michigan Traumatic Brain Injury System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2017

Uncorrected versus demographically-corrected scores on the NIH Toolbox Cognition Battery in persons with traumatic brain injury and stroke

The association between demographic characteristics and neurocognitive performance is well established; however, clinicians may have difficulty selecting when to use uncorrected versus demographically corrected scores. We compared these score types in individuals with traumatic brain injury (TBI) and stroke, on the National Institutes of Health Toolbox-Cognition Battery (NIHTB-CB). ...
Midwest Regional Traumatic Brain Injury Model System
Publication Year
2017

NIH toolbox cognition tests following traumatic brain injury: Frequency of low scores

To apply multivariate base rate analyses to the National Institutes of Health Toolbox Cognition Battery (NIHTB-CB) to facilitate the identification of cognitive impairment in individuals with traumatic brain injury (TBI). Research Method/Design: In a multisite cross-sectional design, 158 participants who sustained a complicated mild or moderate TBI (n = ...
Midwest Regional Traumatic Brain Injury Model System
Publication Year
2017

Post-traumatic epilepsy associations with mental health outcomes in the first two years after moderate to severe TBI: A TBI Model Systems analysis

Research suggests that there are reciprocal relationships between mental health (MH) disorders and epilepsy risk. However, MH relationships to post-traumatic epilepsy (PTE) have not been explored. Thus, the objective of this study was to assess associations between PTE and frequency of depression and/or anxiety in a cohort of individuals ...
Spaulding-Harvard Traumatic Brain Injury Model System
Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
Indiana Traumatic Brain Injury Model System
Virginia Traumatic Brain Injury Model System
North Texas Traumatic Brain Injury Model System
Publication Year
2017

Factors associated with remission of post-traumatic brain injury fatigue in the years following TBI

Post-traumatic brain injury fatigue (PTBIF) is a major problem in the years after traumatic brain injury (TBI), yet little is known about its persistence and resolution. The objective of the study was to identify factors related to PTBIF remission and resolution. TBI Model System registrants at five centres participated ...
Northern New Jersey Traumatic Brain Injury System
Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
New York Traumatic Brain Injury Model System
Ohio Regional Traumatic Brain Injury Model System

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Publication Year

  • 1982 (1)
  • 1991 (2)
  • 1992 (2)
  • 1994 (15)
  • 1995 (10)
  • 1996 (18)
  • 1997 (12)
  • 1998 (22)
  • 1999 (10)
  • 2000 (11)
  • 2001 (30)
  • 2002 (22)
  • 2003 (59)
  • 2004 (55)
  • 2005 (28)
  • 2006 (43)
  • 2007 (60)
  • 2008 (37)
  • 2009 (57)
  • 2010 (57)
  • 2011 (24)
  • 2012 (27)
  • 2013 (20)
  • 2014 (149)
  • 2015 (143)
  • 2016 (105)
  • 2017 (85)
  • 2018 (32)
  • 2019 (41)
  • 2020 (19)
  • 2021 (14)
  • 2022 (2)

Participating Centers

  • Boston-Harvard Burn Injury Model System (1)
  • Carolinas Traumatic Brain Injury Rehabilitation and Research System (16)
  • Georgia Model Brain Injury System (GAMBIS) (2)
  • Indiana Traumatic Brain Injury Model System (50)
  • JFK Johnson Rehabilitation Institute (20)
  • JFK Johnson Rehabilitation Institute Traumatic Brain Injury Model System (9)
  • Mayo Clinic Traumatic Brain Injury Model System (54)
  • Mayo Clinic Traumatic Brain Injury Model System (3)
  • Midwest Regional Spinal Cord Injury Care System (7)
  • Midwest Regional Traumatic Brain Injury Model System (8)
  • Missouri Model Spinal Cord Injury System (1)
  • Missouri Model Traumatic Brain Injury System (11)
  • Moss Traumatic Brain Injury Model System (52)
  • Mount Sinai Spinal Cord Injury Model System (1)
  • National Data and Statistical Center for the TBI Model Systems (11)
  • New York Traumatic Brain Injury Model System (70)
  • Northern New Jersey Spinal Cord Injury System (2)
  • Northern New Jersey Traumatic Brain Injury System (33)
  • North Texas Traumatic Brain Injury Model System (72)
  • Ohio Regional Traumatic Brain Injury Model System (43)
  • Oregon Traumatic Brain Injury Model System (1)
  • Pediatric Burn Injury Rehabilitation Model System (1)
  • Rocky Mountain Regional Brain Injury System (41)
  • Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital (26)
  • Southeastern Michigan Traumatic Brain Injury System (14)
  • Southeastern Michigan Traumatic Brain Injury System (142)
  • South Florida Traumatic Brain Injury Model System (12)
  • Spaulding-Harvard Traumatic Brain Injury Model System (57)
  • TBI Model System of Mississippi (19)
  • TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems (78)
  • UAB Traumatic Brain Injury Model System (47)
  • University of Pittsburgh Model Center for Traumatic Brain Injury (50)
  • University of Washington Traumatic Brain Injury Model System (UW TBIMS) (48)
  • VCU Model Spinal Cord Injury Center (1)
  • Virginia Traumatic Brain Injury Model System (75)

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The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.