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Article describes the development and psychometric properties of the Spinal Cord Injury-Quality of Life (SCI-QOL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and short forms. Focus groups helped define the constructs; cognitive interviews helped revise items; and confirmatory factor ...

Article describes the development and psychometric characteristics of the Spinal Cord Injury – Quality of Life (SCI-QOL) Bowel Management Difficulties and Bladder Management Difficulties item banks, and a short scale to measure bladder complications. Using a mixed-methods design, a pool of items assessing bladder and bowel-related concerns were developed using ...

Study investigated whether grief is a psychometrically sound construct that is distinct from depression in individuals who recently sustained a spinal cord injury (SCI). A total of 206 patients with SCI were recruited from inpatient rehabilitation units at 3 SCI Model System sites. Most patients were non-Hispanic whites (85 ...

Study investigated whether demographic, injury, health, and functional factors similarly have the same predictive association with both somatic and nonsomatic symptoms of depression, and whether somatic and nonsomatic symptoms of depression have the same association with quality of life (QOL). One-year follow-up assessment data from 4,976 participants with traumatic ...

Study developed and evaluated functional ability levels for the Spinal Cord Injury Functional Index (SCI-FI) using calibration and reliability samples. The SCI-FI measures activity limitations in 5 domains: basic mobility, ambulation, wheelchair mobility, self-care, and fine motor function. SCI-FI data were obtained from 1,124 adults with traumatic spinal cord ...

This article provides an overview of existing spinal cord injury (SCI) clinical research databases, including their purposes, characteristics, and accessibility to users; and presents a vision for future collaborations required for clinical research in SCI. This vision highlights the need for validated and relevant data for longitudinal clinical trials ...

Article provides a worksheet to help people with spinal cord injury identify challenges they face when trying to prevent pressure ulcers and work with their health care providers to address those challenges. Instructions and links to more information about preventing pressure ulcers are also included. ...

Study examined the longitudinal effects of race/ethnicity on hospitalization among adults with spinal cord injury (SCI) in the 10-year period after initial injury. Data were extracted from the 2011 National SCI Model Systems database for 3,175 non-Hispanic White, 1,396 non-Hispanic African American, and 575 Hispanic adults with SCI who ...

Study developed and evaluated the psychometric properties of short forms for each of the Spinal Cord Injury-Functional Index (SCI-FI) item banks (basic mobility, self-care, fine motor, ambulation, and manual and power wheelchair mobility). Data were collected from 855 individuals with traumatic spinal cord injury (SCI) recruited from 6 national ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Depression item bank, computer adaptive test (CAT), and short form to assess depressive symptoms experienced by individuals with spinal cord injury (SCI). Grounded-theory-based qualitative item development methods and large-scale field testing were ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Grief and Loss item bank and short form. A literature review guided framework development of grief/loss. New items were created from focus groups. Items were revised based on expert review and patient ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Positive Affect and Well-Being (PAWB) item bank and short form. Qualitative feedback from patient and provider focus groups was used to expand on the Neurological Disorders and Quality of Life (Neuro-QOL) positive ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Psychological Trauma item bank and short form. Using a mixed-methods design, a Psychological Trauma item bank was developed and tested with patient and provider focus groups and cognitive interviews. A 31-item pool ...

Article describes the development and psychometric properties of the Spinal Cord Injury - Quality of Life (SCI-QOL) Resilience item bank and short form. Using a mixed-methods design, a resilience item bank was develop and tested through the use of focus groups with individuals with SCI and clinicians with expertise ...

Article describes the development and psychometric properties of the Spinal Cord Injury-Quality of Life (SCI-QOL) item bank and computer adaptive test (CAT) to assess the effects of stigma on health-related quality of life in individuals with spinal cord injury (SCI). The project included grounded-theory based qualitative item development methods, ...

Article describes the development and calibration of the Spinal Cord Injury -- Quality of Life (SCI-QOL), a patient-reported outcomes measurement system for individuals with spinal cord injury (SCI). Specifically, the authors detail the methods and results of the five phases of the SCI-QOL development: (1) domain/subdomain selection, (2) item ...

Study examined associations between objective and self-reported measures of physical activity (PA) and the relationships of these measures with depression and satisfaction with life (SWL) in people with spinal cord injury (SCI). Data were collected from 86 individuals with traumatic SCI who use a manual wheelchair. Objective measures of ...