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  • Publications

    Transfer component skill deficit rates among veterans who use wheelchairs

    Study determined the deficit rates for transfer component skills among veterans who use wheelchairs and explored the relationship between deficit rates and subject characteristics. Seventy-four men and 18 women performed up to four transfers independently from their wheelchair to a mat table while a therapist evaluated their transfer techniques ...
  • Publications

    Transfer technique is associated with shoulder pain and pathology in people with spinal cord injury: A cross-sectional investigation

    Study investigated how transfer technique and subject characteristics relate to ultrasound measures of shoulder soft tissue pathology and self-reported shoulder pain during transfers in a sample of 76 wheelchair users with spinal cord injury (SCI). Outcome measures included: transfer pain items from the Wheelchair User’s Shoulder Pain Index; transfer ...
  • Publications

    Traumatic spinal cord injury in the United States, 1993-2012

    Study assessed trends in national incidence, etiology, health care utilization, and in-hospital mortality in acute traumatic spinal cord injury (SCI) from 1993 to 2012. Data from the Nationwide Inpatient Sample databases for the years 1993 through 2012, including a total of 63,109 patients with acute traumatic SCI were analyzed. ...
  • Publications

    Ultrasonographic median nerve changes after repeated wheelchair transfers in persons with paraplegia: Relationship with subject characteristics and transfer skills

    Study evaluated the effects of repeated transfers on ultrasound markers for carpal tunnel syndrome (CTS) in people with spinal cord injuries and to relate changes to subject characteristics and transfer skills. Participants were 30 wheelchair users with nonprogressive paraplegia recruited via research registries and at the 2013 National Veterans ...
  • Publications

    Understanding and preventing loss to follow-up: Experiences from the spinal cord injury model systems

    Study identified demographic and clinical factors associated with loss to follow-up (FU) at post-injury years 1 to 35 among 25,871 people with spinal cord injury (SCI) enrolled in the National Spinal Cord Injury Database. Loss to FU was defined as no research information obtained from participants who were eligible ...
  • Publications

    Unmet expectations of adjustment and depressive symptoms among people with chronic traumatic spinal cord injury

    Study examined the effects of unmet expectations of adjustment to chronic traumatic spinal cord injury (TSCI) on depressive symptoms. A total of 863 participants who survived at least 1 year postinjury were assessed at 2 time points separated by 10 years. Using a 10-point ladder (1 = worst and ...
  • Publications

    Updates for the international standards for neurological classification of spinal cord injury

    Article reviews revisions made to the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI), the most widely used classification in the field of spinal cord injury medicine. Since its first publication in 1982, multiple revisions refining the recommended examination, scaling, and classification have taken place to improve ...
  • Publications

    Urological Surveillance and Medical Complications after Spinal Cord Injury in the United States

    Study assessed national patterns of urologic follow-up after spinal cord injury (SCI) to determine how many received adequate surveillance and evaluated the occurrence and predictors of urological complications. The minimum adequate urologic surveillance was defined as: (1) a urologist visit, (2) serum creatinine evaluation, and (3) upper urinary tract ...
  • Publications

    Using rasch motor FIM individual growth curves to inform clinical decisions for persons with paraplegia

    Study examined individual-level temporal changes in functional status for participants with paraplegia in the National Spinal Cord Injury Database (NSCID), as measured by Rasch-transformed Functional Independence Measure (FIM) motor scores. Non-linear random effects modeling, that is, individual growth curve analysis of retrospective data obtained from the NSCID. The authors ...
  • Thomas Bergquist

    Thomas F. Bergquist, PhD, ABPP, is a consultant in the Departments of Physical Medicine and Rehabilitation and Psychiatry and Psychology at Mayo Clinic and an Associate Professor of Psychology in the Mayo Clinic College of Medicine and ...
  • Publications

    Weight change after spinal cord injury

    Study examined the patterns of weight change after spinal cord injury (SCI) and identified associated risk factors using data obtained from 16 SCI Model Systems (SCIMS). Participants were 1,094 individuals with an SCI who were entered into the SCIMS and had a 1-year follow-up between October 2006 and November ...
  • Publications

    What would brain-computer interface users want: Opinions and priorities of potential users with spinal cord injury.

    Study surveyed people with spinal cord injury (SCI) to determine their priorities for brain-computer interface (BCI) applications and design features along with the time investment and risk acceptable to obtain a BCI. Forty people with SCI participated, including of 30 individuals identified from the SCI research registry who were ...
  • Publications

    Wheelchair use and lipophilic statin medications may influence bone loss in chronic spinal cord injury: Findings from the FRASCI-bone loss study

    Study assessed clinical and demographic characteristics associated with change in bone density over a mean of 21 months in 152 men and women with chronic spinal cord injury (SCI) who were enrolled in the Fracture Risk after SCI (FRASCI) study. The association between statin use and bone loss following ...
  • Publications

    Women's experiences of living with neurogenic bladder and bowel after spinal cord injury: Life controlled by bladder and bowel

    Study explored women’s experiences of living with spinal cord injury (SCI) and neurogenic bladder and bowel (NBB), a chronic condition hindering the functioning and quality of life of people with SCI. Secondary analysis of semi-structured interviews from a larger qualitative study of 50 women with SCI was conducted. Transcripts ...
  • Publications

    Zolendronic acid administration failed to prevent bone loss at the knee in persons with acute spinal cord injury: An observational cohort study

    Study investigated the efficacy of zoledronic acid to prevent sublesional bone mineral density (BMD) loss at 6 and 12 months after acute spinal cord injury (SCI). Thirteen subjects with acute motor-complete SCI were prospectively studied: 6 patients received zoledronic acid (5 mg) and 7 subjects did not receive the ...
  • Publications

    Active lifestyle is associated with reduced dyspnea and greater life satisfaction in spinal cord injury

    Study assessed the relationship between measures of activity with dyspnea and satisfaction with life in chronic spinal cord injury (SCI). Between July 2012 and March 2015, 347subjects with traumatic SCI ≥1 year after injury who used a manual wheelchair or walked with or without an assistive device reported hours ...
  • Publications

    Additive effect of age on disability for individuals with spinal cord injuries

    Study examined the additive effect of age on disability for adults with spinal cord injury (SCI). Data regarding demographics, injury and medical characteristics, independence in activities of daily living, and psychosocial well-being were collected from participants with SCI who were enrolled in the SCI Model Systems between 1988 and ...
  • Publications

    Clinical interpretation of the spinal cord injury functional index (SCI-FI)

    Study evaluated the validity of the functional ability levels for the Spinal Cord Injury–Functional Index (SCI-FI). Data were collected from 855 individuals with traumatic spinal cord injury (SCI) enrolled in 6 rehabilitation centers participating in the National SCI Model Systems Network. Cluster analyses identified three distinct groups that represent ...
  • Publications

    Common data elements for spinal cord injury clinical research: A national institute for neurological disorders and stroke project

    Article describes the development of a comprehensive set of common data elements (CDEs), data definitions, case report forms, and guidelines for use in spinal cord injury (SCI) clinical research. As part of the CDE project at the National Institute of Neurological Disorders and Stroke (NINDS), nine working groups composed ...
  • Publications

    Current pregnancy among women with spinal cord injury: Findings from the US national spinal cord injury database

    Study examined the prevalence of pregnancy and associations with sociodemographic and clinical factors among women with spinal cord injury (SCI) enrolled in the United States (US) National SCI Database (NSCID). The NSCID collects data from patients receiving services at SCI Model Systems centers at years 1 and 5 and then ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.