Year, Volume, Issue, Page(s):15, 38, 3, 397-408
Article describes the development and psychometric properties of the Spinal Cord Injury-Quality of Life (SCI-QOL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and short forms. Focus groups helped define the constructs; cognitive interviews helped revise items; and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics. The calibration sample consisted of 641 individuals from 5 SCI Model System sites and one Veterans Administration medical center; a reliability sample consisted of 245 individuals residing in the community. A subset of 27 Ability to Participate and 35 Satisfaction items demonstrated good measurement properties and negligible differential item functioning related to demographic and injury characteristics. Ten item short forms correlate (>0.96) with the full banks. Variable-length computer adaptive tests (CATs) with a minimum of 4 items, variable-length CATs with a minimum of 8 items, fixed-length CATs of 10 items, and the 10-item short forms demonstrate construct coverage and measurement error that is comparable to the full item bank. The Ability to Participate and Satisfaction with Social Roles and Activities CATs and short forms demonstrate excellent psychometric properties and are suitable for clinical and research applications. The SCI-specific measures correlate strongly with the Patient Reported Outcomes Measurement Information System (PROMIS) and Quality of Life in Neurological Disorders (Neuro-QOL) versions.