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Model Systems Knowledge Translation 
Center

  1. Home
  2. Living with Traumatic Brain Injury (TBI)
 
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TBI Publications

Publication Year
2019

Scoping review of clinical rehabilitation research pertaining to traumatic brain injury: 1990-2016

Introduction: Understanding the impact of disease on function and improving functional outcomes is an important goal of rehabilitation. This scoping review analyzes 25 years of published traumatic brain injury (TBI) clinical rehabilitation research (CRR) to determine the frequency with which function is a research goal. Methods: The review protocol was prepared ...
South Florida Traumatic Brain Injury Model System
Moss Traumatic Brain Injury Model System
Publication Year
2019

Care partner problem solving training (CP-PST) for care partners of adults with traumatic brain injury during inpatient rehabilitation: Study protocol for a multisite, randomized, single-blind clinical feasibility trial

Traumatic brain injury (TBI) often leads to immediate and chronic functional impairments that affect care partners, or those providing physical and/or emotional support to individuals with TBI. The many challenges associated with being a care partner often lead to caregiver burden and can compromise the well-being and quality of life ...
North Texas Traumatic Brain Injury Model System
JFK Johnson Rehabilitation Institute Traumatic Brain Injury Model System
Northern New Jersey Traumatic Brain Injury System
Rocky Mountain Regional Brain Injury System
Publication Year
2019

The intersection of lifetime history of traumatic brain injury and the opioid epidemic

Full article available at link.
Ohio Regional Traumatic Brain Injury Model System
Publication Year
2019

Development and calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks and short forms

Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form ...
Midwest Regional Spinal Cord Injury Care System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Northern New Jersey Traumatic Brain Injury System
Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2019

Volunteering and its association with participation and life satisfaction following traumatic brain injury

Background: Volunteering has been found to improve life satisfaction and participation in the general population, but its impact has not been thoroughly studied among those with traumatic brain injury (TBI). It is important to investigate whether volunteering is helpful in addressing participation and life satisfaction to inform future treatment. ...
Rocky Mountain Regional Brain Injury System
Publication Year
2019

Functional outcome trajectories following inpatient rehabilitation for TBI in the United States: A NIDILRR TBIMS and CDC interagency collaboration

Objective: To describe trajectories of functioning up to 5 years after traumatic brain injury (TBI) that required inpatient rehabilitation in the United States using individual growth curve models conditioned on factors associated with variability in functioning and independence over time. Design: Secondary analysis of population-weighted data from a multicenter longitudinal cohort ...
New York Traumatic Brain Injury Model System
Rocky Mountain Regional Brain Injury System
Ohio Regional Traumatic Brain Injury Model System
Indiana Traumatic Brain Injury Model System
Publication Year
2019

Linking the GAD-7 and PHQ-9 to the TBI-QOL Anxiety and Depression item banks

OBJECTIVE: To link scores on commonly used measures of anxiety (7-item Generalized Anxiety Disorder Scale; GAD-7) and depression (9-item Patient Health Questionnaire; PHQ-9) to the Traumatic Brain Injury Quality of Life (TBI-QOL) measurement system. SETTING: 5 Traumatic Brain Injury Model Systems. PARTICIPANTS: A total of 385 individuals with traumatic ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Midwest Regional Spinal Cord Injury Care System
Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
Northern New Jersey Spinal Cord Injury System
Publication Year
2019

Measuring self-reported cognitive function following TBI: Development of the TBIQOL Executive Function and Cognition-General Concerns item banks

OBJECTIVE: To develop, calibrate, and evaluate the test-retest reliability of a new patient-reported outcome measure of headache pain relevant for individuals with traumatic brain injury (TBI). SETTING: Six TBI Model Systems rehabilitation centers in the United States. PARTICIPANTS: Adults with medically confirmed documentation of TBI. DESIGN: Cross-sectional calibration field ...
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Northern New Jersey Spinal Cord Injury System
Publication Year
2019

Development of the TBI-QOL Headache Pain item bank and short form

OBJECTIVE: To develop, calibrate, and evaluate the test-retest reliability of a new patient-reported outcome measure of headache pain relevant for individuals with traumatic brain injury (TBI). SETTING: Six TBI Model Systems rehabilitation centers in the United States. PARTICIPANTS: Adults with medically confirmed documentation of TBI. DESIGN: Cross-sectional calibration field ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2019

Measuring fatigue in TBI: Development of the TBI-QOL Fatigue item bank and short form

OBJECTIVE: To develop a traumatic brain injury (TBI)-specific, item response theory (IRT)-calibrated Fatigue item bank, short form, and computer adaptive test (CAT) as part of the Traumatic Brain Injury-Quality of Life (TBI-QOL) measurement system. SETTING: Five TBI Model Systems rehabilitation centers in the US PARTICIPANTS:: Adults with complicated mild, ...
Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital
Southeastern Michigan Traumatic Brain Injury System
New York Traumatic Brain Injury Model System
Publication Year
2019

The relation between cognitive dysfunction and diffusion tensor imaging parameters in traumatic brain injury

PURPOSE OF THE STUDY: To investigate the association among global and regional white matter fractional anisotropy (FA) values following traumatic brain injury (TBI) and cognitive functioning. MATERIALS AND METHODS: This research was conducted in an urban rehabilitation hospital. Participants included adults who were healthy controls (n = 18) or ...
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2019

Predictors of 1-year global outcomes after traumatic brain injury among older adults: A NIDILRR Traumatic Brain Injury Model Systems study

Indiana Traumatic Brain Injury Model System
Rocky Mountain Regional Brain Injury System
North Texas Traumatic Brain Injury Model System
New York Traumatic Brain Injury Model System
UAB Traumatic Brain Injury Model System
Spaulding-Harvard Traumatic Brain Injury Model System
Publication Year
2019

The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI: TBI-CareQOL Caregiver Strain

To develop a new measure of caregiver strain for use in caregivers of individuals with traumatic brain injury (TBI), Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver Strain.
Southeastern Michigan Traumatic Brain Injury System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2019

Interviewer- versus self-administration of PROMIS® measures for adults with traumatic injury

OBJECTIVE: To assess differential item functioning and observed mean differences across two modes of administration for PROMIS® measure scores in a sample of adults with traumatic injury. METHOD: Items from 7 PROMIS® adult measures (v1.0 Physical Function, Fatigue, Pain Interference, Anger, Anxiety, and Depression and v2.0 Social Health-Emotional Support) ...
Southeastern Michigan Traumatic Brain Injury System
Rocky Mountain Regional Brain Injury System
Spaulding-Harvard Traumatic Brain Injury Model System
Moss Traumatic Brain Injury Model System
Publication Year
2019

The Development of a New Computer Adaptive Test to Evaluate Anxiety in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Caregiver-Specific Anxiety

To design a new measure of caregiver-specific anxiety for use in caregivers of individuals with traumatic brain injury (TBI), the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver-Specific Anxiety item bank.
Southeastern Michigan Traumatic Brain Injury System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2019

The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury

To develop new patient-reported outcome (PRO) measures to better understand feelings of loss in caregivers of individuals with traumatic brain injury (TBI)
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Southeastern Michigan Traumatic Brain Injury System
Publication Year
2019

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

To develop a new measurement system, the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL), that can evaluate both general and caregiving-specific aspects of health-related quality of life (HRQOL) in caregivers of persons with traumatic brain injury (TBI).
Southeastern Michigan Traumatic Brain Injury System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2019

Understanding Health-related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Mental Health Measures

To provide important reliability and validity data to support the use of the Patient-Reported Outcomes Measurement Information System (PROMIS) mental health measures in caregivers of civilians or service members/veterans (SMVs) with traumatic brain injury (TBI).
Southeastern Michigan Traumatic Brain Injury System
TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems
Publication Year
2019

Determining a transitional scoring link between PROMIS pediatric and adult physical health measures

PURPOSE: Having independent versions of the PROMIS® scales (for Pediatric and Adults) is problematic as scores cannot be evaluated longitudinally as individuals move from childhood into adulthood. The primary aim of this research project is to use item response theory (IRT) to develop a transitional scoring link (or "crosswalk") ...
Spaulding-Harvard Traumatic Brain Injury Model System
Moss Traumatic Brain Injury Model System
Southeastern Michigan Traumatic Brain Injury System
Rocky Mountain Regional Brain Injury System
Publication Year
2019

Detecting malingering in traumatic brain injury: Combining response time with performance validity test accuracy

OBJECTIVE: The present study examined the incremental utility of item-level response time (RT) variables on a traditional performance validity test in distinguishing adults with verified TBI from adults coached to feign neurocognitive impairment. METHOD: Participants were 45 adults with moderate to severe TBI, 45 healthy adults coached to feign ...
Southeastern Michigan Traumatic Brain Injury System

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Publication Year

  • 1982 (1)
  • 1991 (2)
  • 1992 (2)
  • 1994 (15)
  • 1995 (10)
  • 1996 (18)
  • 1997 (12)
  • 1998 (22)
  • 1999 (10)
  • 2000 (11)
  • 2001 (30)
  • 2002 (22)
  • 2003 (59)
  • 2004 (55)
  • 2005 (28)
  • 2006 (43)
  • 2007 (60)
  • 2008 (37)
  • 2009 (57)
  • 2010 (57)
  • 2011 (24)
  • 2012 (27)
  • 2013 (20)
  • 2014 (149)
  • 2015 (143)
  • 2016 (105)
  • 2017 (85)
  • 2018 (32)
  • 2019 (41)
  • 2020 (19)
  • 2021 (14)
  • 2022 (2)

Participating Centers

  • Boston-Harvard Burn Injury Model System (1)
  • Carolinas Traumatic Brain Injury Rehabilitation and Research System (16)
  • Georgia Model Brain Injury System (GAMBIS) (2)
  • Indiana Traumatic Brain Injury Model System (50)
  • JFK Johnson Rehabilitation Institute (20)
  • JFK Johnson Rehabilitation Institute Traumatic Brain Injury Model System (9)
  • Mayo Clinic Traumatic Brain Injury Model System (54)
  • Mayo Clinic Traumatic Brain Injury Model System (3)
  • Midwest Regional Spinal Cord Injury Care System (7)
  • Midwest Regional Traumatic Brain Injury Model System (8)
  • Missouri Model Spinal Cord Injury System (1)
  • Missouri Model Traumatic Brain Injury System (11)
  • Moss Traumatic Brain Injury Model System (52)
  • Mount Sinai Spinal Cord Injury Model System (1)
  • National Data and Statistical Center for the TBI Model Systems (11)
  • New York Traumatic Brain Injury Model System (70)
  • Northern New Jersey Spinal Cord Injury System (2)
  • Northern New Jersey Traumatic Brain Injury System (33)
  • North Texas Traumatic Brain Injury Model System (72)
  • Ohio Regional Traumatic Brain Injury Model System (43)
  • Oregon Traumatic Brain Injury Model System (1)
  • Pediatric Burn Injury Rehabilitation Model System (1)
  • Rocky Mountain Regional Brain Injury System (41)
  • Rusk Rehabilitation TBIMS at NYU Langone Health and Bellevue Hospital (26)
  • Southeastern Michigan Traumatic Brain Injury System (14)
  • Southeastern Michigan Traumatic Brain Injury System (142)
  • South Florida Traumatic Brain Injury Model System (12)
  • Spaulding-Harvard Traumatic Brain Injury Model System (57)
  • TBI Model System of Mississippi (19)
  • TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems (78)
  • UAB Traumatic Brain Injury Model System (47)
  • University of Pittsburgh Model Center for Traumatic Brain Injury (50)
  • University of Washington Traumatic Brain Injury Model System (UW TBIMS) (48)
  • VCU Model Spinal Cord Injury Center (1)
  • Virginia Traumatic Brain Injury Model System (75)

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The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.