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Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Grief and Loss item bank and short form. A literature review guided framework development of grief/loss. New items were created from focus groups. Items were revised based on expert review and patient feedback ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Positive Affect and Well-Being (PAWB) item bank and short form. Qualitative feedback from patient and provider focus groups was used to expand on the Neurological Disorders and Quality of Life (Neuro-QOL) positive affect ...

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Positive Affect and Well-Being (PAWB) item bank and short form. Qualitative feedback from patient and provider focus groups was used to expand on the Neurological Disorders and Quality of Life (Neuro-QOL) positive affect ...

Article describes the development and psychometric properties of the Spinal Cord Injury-Quality of Life (SCI-QOL) item bank and computer adaptive test (CAT) to assess the effects of stigma on health-related quality of life in individuals with spinal cord injury (SCI). The project included grounded-theory based qualitative item development methods, large-scale ...

BACKGROUND: The incidence of late posttraumatic seizures (LPTS) in individuals with traumatic brain injury (TBI) ranges anywhere from 5% to 18.9% in civilian populations up to 32% to 50% in military personnel. OBJECTIVE: This article reviews the current knowledge about the incidence and prevalence of LPTS following a TBI, the ...

Data on traumatic brain injury (TBI) economic outcomes are limited. We used Rochester Epidemiology Project (REP) resources to estimate long-term medical costs for clinically-confirmed incident TBI across the full range of severity after controlling for pre-existing conditions and co-occurring injuries. All Olmsted County, Minnesota, residents with diagnoses indicative of potential ...

Article describes the development and calibration of the Spinal Cord Injury -- Quality of Life (SCI-QOL), a patient-reported outcomes measurement system for individuals with spinal cord injury (SCI). Specifically, the authors detail the methods and results of the five phases of the SCI-QOL development: (1) domain/subdomain selection, (2) item development ...

The great majority of traumatic brain injury (TBI) is of mild severity, with Glasgow Coma Scores (GCS) of 13-15, post-traumatic amnesia of less than 48 hours and brief, if any, hospitalization. All mild TBI admissions to hospital were provided with education in the form of a brief interview and a ...

Study investigate how mothers with spinal cord injury (SCI) adjust to parenting, their marriages, and their families, and how their children adjust to their mothers' disability. The experimental group consisted of 88 mothers with SCI, 46 of their partners, and 31 of their children. The control group was composed of ...

Headache is one of the most frequently reported symptoms following traumatic brain injury (TBI). Little is known about how these headaches change over time. We describe the natural history of headache in individuals with moderate to severe TBI over 5 years after injury. A total of 316 patients were prospectively ...

Article examining the clinical competency of medical school residents by comparing their results on the written board certification examination and the Objective Structured Clinical Examination (OSCE). Discusses the OSCE testing method and the need for quality clinical training and evaluation.

Recent studies have shown that burn patients receive larger volumes of fluids than predicted by the Baxter formula and the reason for this is unclear. One potential reason is that increased analgesics are used which couldblunt the response to fluid resuscitation. The purpose of this study was to compare the ...

Questions of how to measure outcomes are commonly heard in rehabilitation today. In this supplement we review the current state of the art of outcomes measurement in traumatic brain injury rehabilitation, discuss key issues, and identify steps that need to be taken. The underlying question is not simply that of ...

In Part II we address tools for describing general functional levels of clients in acute care, in traumatic brain injury (TBI) rehabilitation programs, and in the community. Tools must be brief, have proven reliability, and measure characteristics common to moderately and severely brain-injured individuals. Possible components of a uniform dataset ...

Article discusses the insider-outsider distinction in the context of people with disabilities. Insiders to disability are likely to have different subjective responses to life situations than do those who experience disability as onlookers. The importance of including the insider’s perspective is discussed with respect to assessing participation in terms of ...