Overview of the Spinal Cord Injury - Quality of Life (SCI-QOL) measurement system.

Model System:

SCI

Reference Type:

Journal

Accession No.:

J71732

Journal:

Journal of Spinal Cord Medicine - JSCM (formerly Journal of the American Paraplegia Society)

Year, Volume, Issue, Page(s):

2015 , 38, 3, 257-269

Publication Website:

http://www.maneyonline.com/doi/abs/10.1179/2045772315Y.0000000023

Abstract:

Article describes the background and development of the Spinal Cord Injury -- Quality of Life (SCI-QOL) measurement system, a spinal cord injury (SCI)-specific, patient-reported outcome measure of health-related quality of life (HRQOL) covering physical, emotional, and social domains of functioning. The SCI-QOL was developed using item response theory (IRT) and comprises 22 subdomains that include 19 IRT-calibrated item banks and 3 fixed-length scales measuring physical, emotional, and social aspects of HRQOL. Its design ensures that each item is relevant to individuals with SCI. Each item bank may be administered as a full bank, short form, or computer adaptive test, while scales may be administered in fixed-length format only.

Author(s):

Tulsky, David S., Kisala, Pamela A., Victorson, David, Tate, Denise G., Heinemann, Allen W., Charlifue, Susan, Kirshblum, Steve C., Fyffe, Denise, Gershon, Richard, Spungen, Ann M., Bombardier, Charles H., Dyson-Hudson, Trevor A., Amtmann, Dagmar, Kalpakjian, Claire Z., Choi, Seung W., Jette, Alan M., Forchheimer, Martin, Cella, David