Long-term outcome of children with high tetraplegia and ventilator dependence

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Prospective data collection and retrospective chart reviews were conducted to examine the physical outcomes and quality of life (QOL) for children with spinal cord injury (SCI) and long-term mechanical ventilation. Of the 49 children, 25 were alive, 16 died following initial hospital discharge, and 8 were lost to follow-up. Forty had high tetraplegia, 7 had low tetraplegia, and 2 had paraplegia. Survival after SCI ranged from 2 to 23 years in those who died. Interviews were conducted with survivors to examine their daily activities, perceptions of their QOL, and their health and medical complications. Overall, these children had done remarkably well medically and psychologically.

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