Development and psychometric characteristics of the SCI-QOL pressure ulcers scale and short form

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Article describes the development and psychometric characteristics of the Spinal Cord Injury – Quality of Life (SCI-QOL) Pressure Ulcers scale, a self-reported measure of the impact of pressure ulcers on health-related quality of life in individuals with spinal cord injury (SCI). Grounded-theory based qualitative item development methods, large-scale item calibration testing, confirmatory factor analysis (CFA), and item response theory-based psychometric analysis were performed. A total of 189 adults with traumatic SCI who experienced a pressure ulcer within the past 7 days completed 30 items related to pressure ulcers. Testing was conducted at several rehabilitation centers across the United States, including 5 SCI Model System centers and one Veterans Affairs medical center. CFA confirmed a unidimensional pool of items. IRT analyses were conducted. A constrained Graded Response Model with a constant slope parameter was used to estimate item thresholds for the 12 retained items. The SCI-QOL Pressure Ulcers scale may be administered in its entirety or as a 7-item short form and both are available for both research and clinical practice.

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