Are intensive data collection methods in pain research feasible in those with physical disability? A study in persons with chronic pain and spinal cord injury

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Study examined the feasibility (study compliance, protocol acceptability, and reactivity) of intensive data collection methods in adults with chronic pain and spinal cord injury (SCI). A secondary analysis was conducted of data from a 7-day ecological momentary assessment and end-of-day diary study in a sample of 131 community dwelling adults with SCI. The results showed rates of missing data ranged from 18.4 to 22.8 percent across measures. Participant compliance was related to time of day/presence of audible prompts, mobility aid use, race, and baseline levels of pain and pain interference, with more missing data at wake and bedtimes/no prompts, and for those who used hand-held mobility devices, identified as black/African American, and/or reported higher baseline pain and pain interference. Participants rated the study methodology as generally highly acceptable and expressed willingness to participate in similar studies of much longer duration. There was no evidence of reactivity, defined as temporal shifts in pain or pain interference ratings. Overall, intensive pain data collection is feasible in subjects with SCI with no evidence that the methodology impacts pain intensity or pain interference ratings

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