While working closely with the model systems, the MSKTC also seeks to collaborate with other key stakeholders to better serve the needs of individuals with SCI, TBI and Burn. This page contains additional SCI resources and organizations external to MSKTC. Neither Model Systems, the MSKTC, or NIDILRR have reviewed all of the content, and you should not assume endorsement from these entities.
AbleThrive is a platform of resources for people with SCI and their families that are customized to their interest and the details of their condition.
The Academy of Spinal Cord Injury Professionals (ASCIP) is the only interdisciplinary membership association for health and research professionals that has a focus on spinal cord injury and disease and research.
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
Disability.gov is the federal government website for comprehensive information on disability programs and services nationwide.You can find thousands of resources on topics, such as applying for Social Security disability benefits, finding a job and paying for accessible housing, to name just a few.
FacingDisability is designed to provide Internet-based information and support for people with spinal cord injuries and the members of their families. The website has more than 1,000 videos of family members answering real-life questions about how they cope with a spinal cord injury.
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
National Spinal Cord Injury Association, the membership division of United Spinal, was founded in 1948 to improve the lives of all paralyzed Americans, and provides active-lifestyle information, peer support and advocacy that empowers individuals to achieve their highest potential in all facets of life.
Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of veterans of the armed forces who have experienced spinal cord injury or dysfunction.
The mission of SCOPE mission is to enhance the development of clinical trial and clinical practice protocols that will accurately validate therapeutic interventions for spinal cord injury (SCI) leading to the adoption of improved best practices.
The SCI guide is assembled by the New England Regional Spinal Cord Injury Center (NERSCIC) at Boston Medical Center, who has assembled a team of people with SCI to review and rate the top spinal cord injury websites.
United Spinal Association’s mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D), and is committed to advancing public policies that lead to greater civil rights and independence for people with disabilities.
Unite 2 Fight Paralysis' mission is to unite and empower the international SCI community to cure paralysis through advocacy, education, and support for research.