Model System:

TBI

Reference Type:

Journal

Accession No.:

J71245

Journal:


Archives of Physical Medicine and Rehabilitation

Year, Volume, Issue, Page(s):

, 96, 4, 589-595

Publication Website:

Abstract:

Article presents the results of a research project to develop measures of environmental factors that affect participation and defines an initial item set of facilitators and barriers to participation after stroke, traumatic brain injury, and spinal cord injury. Instrument development included an extensive literature review, item classification and selection, item writing, and cognitive testing following the approach of the Patient-Reported Outcomes Measurement Information System. Ten content area and outcome measurement experts contributed to instrument development; 200 individuals with the target conditions participated in focus groups and 15 participated in cognitive testing. Environmental factor items were categorized in 6 domains: assistive technology; built and natural environment; social environment; services, systems, and policies; access to information and technology; and economic quality of life. The authors binned 2,273 items across the 6 domains, winnowed this pool to 291 items for cognitive testing, and recommended 274 items for pilot data collection. Five of the 6 domains correspond closely to the International Classification of Functioning, Disability and Health taxonomy of environmental factors; the sixth domain, economic quality of life, reflects an important construct that reflects financial resources that affect participation. Testing with a new and larger sample is underway to evaluate reliability, validity, and sensitivity.

Author(s):


Heinemann, Allen W., Magasi, Susan, Hammel, Joy, Carlozzi, Noelle E., Garcia, Sofia F., Hahn, Elizabeth A., Lai, Jin-Shei, Tulsky, David, Gray, David B., Hollingsworth, Holly, Jerousek, Sara

Participating Centers: