Model System:

TBI

Reference Type:

Journal

Accession No.:

J76048

Journal:


Quality of Life Research

Year, Volume, Issue, Page(s):

, , ,

Publication Website:

Abstract:

Article describes the development and evaluation of the Life Impact Burn Recovery Evaluation (LIBRE) Profile, a patient-reported multidimensional assessment for understanding the social participation after burn injuries. One hundred ninety-two questions representing multiple social participation areas were administered to 601 burn survivors. Exploratory factor analysis and confirmatory factor analysis (CFA) were used to identify the underlying structure of the data. Using item response theory methods, a Graded Response Model was applied for each identified sub-domain. The resultant multidimensional LIBRE Profile can be administered via computerized adaptive testing (CAT) or fixed short forms. The study sample was 54.7 percent women with a mean age of 44.6 years. The average time since burn injury was 15.4 years and the average total body surface area burned was 40 percent. The CFA indicated acceptable fit statistics. The six unidimensional scales were named: relationships with family and friends, social interactions, social activities, work and employment, romantic relationships, and sexual relationships. The marginal reliability of the full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects less than 15 percent for all scales. Finding suggest that the LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation.

Author(s):


Kazis, Lewis E., Marino, Molly, Ni, Pengsheng, Bori, Marina S., Amaya, Flor, Dore, Emily, Ryan, Colleen M., Schneider, Jeff C., Shie, Vivian, Acton, Amy, Jette, Alan M.

Participating Centers: