Project Type
independent
Project Lead Center
Project Start Date
10/01/2012
Project End Date
09/30/2017

This study assesses the responsiveness and sensitivity of the Traumatic Brain Injury Quality of Life Measurement System (TBI-QoL) computerized adaptive tests (CATs) in two groups of individuals with TBI: those within the first year of injury and those who are more than one year after injury. The TBI-QoL is a new comprehensive patient reported outcome system that was developed as a collaborative project within the previous cycle of the TBIMS program. It was developed in a coordinated effort with large federal initiatives from NIH (NIH Common Fund: NIH Patient Reported Outcomes Measurement Information System (PROMIS) and NINDS: Neuro-QOL) and the Department of Veterans Affairs (Rehabilitation Research & Development Program), and it is recommended as a supplemental/emerging Common Data Element (CDE) promoted by this interagency initiative.