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  • Pregnancy SCI Infocomic

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  • Infocomic Files - Spanish Bowel Function

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  • 2022 Burn Factsheet Booklet

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  • 2022 Spanish Burn Factsheet Booklet

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  • 2022 TBI Factsheet Booklet

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    22-18406-TBI-Booklet-combined-080422.pdf
  • 2022 TBI Spanish Factsheet Booklet

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  • SCI and Pregnancy Spanish Infocomic Files

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  • Publications

    The Impact of Burn Size on Community Participation: A Life Impact Burn Recovery Evaluation (LIBRE) Study

    Abstract Objective: To assess the association of burn size and community participation as measured by the LIBRE Profile. Summary of background data: Burn size is an established clinical predictor of survival after burn injury. It is often a factor in guiding decisions surrounding early medical interventions, however, literature is inconclusive on its ...
  • Publications

    Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool 1-5 Life Impact Burn Recovery Evaluation (LIBRE) Profile

    Modern, reliable, and valid outcome measures are essential to understanding the health needs of young children with burn injuries. Burn-specific and age-appropriate legacy assessment tools exist for this population but are hindered by the limitations of existing paper-based instruments. The purpose of this study was to develop item pools comprised ...
  • Publications

    Impact of Community-Level Socioeconomic Disparities on Quality of Life After Burn Injury: A Burn Model Systems Database Study

    Introduction Individual- and community-level socioeconomic disparities impact overall health and injury incidence, severity, and outcomes. However, the impact of community-level socioeconomic disparities on recovery after burn injury is unknown. We aimed to characterize the association between community-level socioeconomic disparities and health-related quality of life (HRQL) after burn injury. These findings might ...
  • Erica Wasmund

  • Publications

    Development of the School-Aged Life Impact Burn Recovery Evaluation (SA-LIBRE5-12) Profile: A Conceptual Framework

    Pediatric burn injuries can alter the trajectory of the survivor's entire life. Patient-centered outcome measures are helpful to assess unique physical and psychosocial needs and long-term recovery. This study aimed to develop a conceptual framework to measure pediatric burn outcomes in survivors aged 5 to 12 years as a part ...
  • Publications

    Developing trajectories of social recovery after burn injury: Preliminary results from the LIBRE Journey Study

  • Publications

    Comparing outcomes of mechanical ventilation with high vs. moderate tidal volumes in tracheostomized patients with spinal cord injury in acute inpatient rehabilitation setting: a retrospective cohort study

    Study design: Retrospective cohort study. Objectives: The primary objective of this study was to evaluate safety and efficacy of higher tidal volumes (HVt) compared to moderate Vt (MVt) in people with spinal cord injury (SCI) admitted to acute inpatient rehabilitation (AIR) facility on mechanical ventilation via tracheostomy. Setting: AIR facility in the ...
  • Publications

    Blood Alcohol Concentration Is Associated With Improved AIS Motor Score After Spinal Cord Injury

    Objective: To investigate the relationship between blood alcohol concentration (BAC) and neurologic recovery after traumatic spinal cord injury (TSCI) using standardized outcome measures from the International Standards for the Neurological Classification of Spinal Cord Injury (ISNCSCI) examination. Method: This is a retrospective review of merged, prospectively collected, multicenter data from the ...
  • Publications

    Early Trauma Indicators and Rehabilitation Outcomes in Traumatic Spinal Cord Injury

    Objectives: To investigate the relationship between early trauma indicators and neurologic recovery after traumatic SCI using standardized outcome measures from the ISNCSCI examination and standardized functional outcome measures for rehabilitation populations. Methods: This is a retrospective review of merged, prospectively collected, multicenter data from the Spinal Cord Injury Model Systems (SCIMS) ...
  • Publications

    Linking Individual Data From the Spinal Cord Injury Model Systems Center and Local Trauma Registry: Development and Validation of Probabilistic Matching Algorithm

    Background: Linking records from the National Spinal Cord Injury Model Systems (SCIMS) database to the National Trauma Data Bank (NTDB) provides a unique opportunity to study early variables in predicting long-term outcomes after traumatic spinal cord injury (SCI). The public use data sets of SCIMS and NTDB are stripped of ...
  • Publications

    Utilization of Complementary and Integrative Health Care by People With Spinal Cord Injury in the Spinal Cord Injury Model Systems: A Descriptive Study

    Objective: To characterize the use of complementary and integrative health care (CIH) by people with spinal cord injury. Design: Cross-sectional self-report study. Setting: Participants were recruited from 5 Spinal Cord Injury Model Systems (SCIMS) centers across the United States. Interventions: Not applicable. Participants: A total of 411 persons enrolled in the SCIMS completing their ...
  • Publications

    Demographic and Health Profiles of People Living With Traumatic Spinal Cord Injury in the United States During 2015-2019: Findings from the Spinal Cord Injury Model Systems Database

    Objective: To estimate the population profile of people living with traumatic spinal cord injury (TSCI) to help evaluate health care needs of this aging population. Design: Cross-sectional study. Setting: SCI Model Systems (SCIMS) centers in the United States. Participants: Individuals (N=20,437) who: (1) incurred a TSCI between 1972 and 2019, (2) were initially ...
  • Publications

    Cause of Death Trends Among Persons With Spinal Cord Injury in the United States: 1960-2017

    Objective: To identify trends in causes of death after spinal cord injury (SCI) that could enhance understanding of why life expectancy after SCI has not improved in the last 3 decades. Design: Cohort study. Setting: Twenty-nine SCI Model Systems and 3 Shriners Hospitals. Participants: Individuals with traumatic SCI (N=49,266) enrolled in the SCI ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.