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  • Quick Reviews

    Factors Associated With Life Satisfaction After TBI

    What is the study about?This study looked at factors influencing life satisfaction 10 years after moderate to severe traumatic brain injury (TBI)—an injury caused by a blow or jolt to the head, such as from a car crash, fall, or violence. Researchers used “extreme phenotyping,” comparing individuals with very high ...
  • Quick Reviews

    Early Factors That Predict Life Satisfaction After TBI

    What is the study about?This study examined whether early factors after a traumatic brain injury (TBI)—a disruption in brain function caused by a blow or jolt to the head—can predict life satisfaction 10 years later. Specifically, it asked whether functioning at 1 year after a moderate to severe TBI can ...
  • Policy Brief Template and Instructions

    As researchers, you are best suited to translate your data and findings so that policy makers can make informed rehabilitation-related decisions. This tool provides a template and step-by-step instructions for developing a policy brief to communicate your ...
  • Disclaimer

    The contents of this website were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health ...
  • Factsheets

    Hoja informativa sobre preparación ante emergencias para personas con lesiones medulares

    IntroducciónEstar preparado para una emergencia es fundamental para las personas con lesión de médula espinal (LME), ya que presentan vulnerabilidades y necesidades únicas. Esta hoja informativa ofrece orientación sobre los pasos que pueden tomar las personas con LME para mejorar su seguridad durante una emergencia, como un desastre natural, un ...
  • Videos

    Understanding Emotional Triggers after Brain Injury

     Dr. Backhaus describes what emotional triggers are after TBI.Disclaimer: This information is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of the video were developed under grants from the NIDILRR (grant numbers: 90DP0036, ...
  • Publications

    Contextualizing Employment Outcomes After Spinal Cord Injury With Novel Area-Level Economic Measures: A Cross-Sectional Analysis of the National Spinal Cord Injury Model Systems Database

    Objective:To investigate the association of area-level economic characteristics with employment outcomes in a sample of participants in the national Spinal Cord Injury Model Systems (SCIMS) database.Design:Secondary analysis of cross-sectional survey data collected for the SCIMS database linked to administrative data from the 2019 American Community Survey (ACS) 5-year estimates.Setting:Community.Intervention:Not applicable.Participants:People ...
  • Publications

    Knowledge of and adherence to the Dietary Guidelines for Americans by individuals with chronic spinal cord injuries and disorders

    Objective: Assess knowledge of and adherence to DGA food group recommendations and their associations and evaluate beliefs about whether individuals with SCI/D should follow the same guidelines as those without SCI/D, and how these beliefs relate to adherence.Design: Cross-sectional survey.Setting: National Veterans Health Administration SCI/D Centers, Midwest Regional SCI Model System of Care, ...
  • Publications

    Development and content validity of a nutrition knowledge questionnaire for individuals living with spinal cord injuries and disorders

    ObjectivesIndividuals with spinal cord injuries and disorders (SCI/D) experience several chronic and SCI-specific secondary health complications that are influenced by nutrition, which is a modifiable risk factor. Improving nutritional knowledge is essential to support healthy dietary behaviors, yet no validated tool exists in this population. This study describes the development ...
  • Publications

    Predictors of Complications and Recurrence After Pressure Injury Reconstruction in Spinal Cord Injury: A Systematic Review and Meta-Analysis

    Spinal cord injury (SCI) predisposes patients to pressure injuries (PIs) often requiring surgery. Multiple factors influence postoperative complications and recurrence, though their associations remain unclear. We performed a PRISMA-guided systematic review and meta-analysis to assess predictors of acute postoperative complications and PI recurrence in SCI patients undergoing surgery. PubMed, Scopus ...
  • Publications

    Evolving Demographics and Injury Characteristics of US Traumatic Spinal Cord Injury, 1972-2024

    Objectives: To examine demographic and injury characteristics of new traumatic spinal cord injury (tSCI) cases from 1972 to 2024, contextualized by US population trends.Design: Cross-sectional analysis of a longitudinal database.Setting: Thirty-one Spinal Cord Injury Model Systems (SCIMS) centers throughout the United States.Participants: A total of 37,866 SCIMS database participants grouped into 6 injury cohorts ...
  • Publications

    Longitudinal Trajectories of Health-Related Quality of Life and Life Satisfaction after Major Burn Injury: A Multicenter Cohort Study

    Advances in burn care have markedly improved survival after major injuries. However, survivors often experience significant physical and psychosocial sequelae. We aimed to characterize long-term health-related quality of life (HRQoL) among burn survivors to inform expected trajectories, rehabilitation needs, and common impairments. Adult burn survivors from a multicenter, longitudinal cohort ...
  • Publications

    Development of Short Forms of the Preschool Life Impact Burn Recovery Evaluation 1 to 5 years

    The Preschool Life Impact Burn Recovery Evaluation Computer Adaptive Test was developed using Rasch methods and computer adaptive testing technologies to assess burn recovery among children aged 1-5 years. To enhance accessibility in settings without advanced computer technology, this study developed short forms. Calibration data from the Preschool Life Impact ...
  • Publications

    Transportation mode impact on care service utilization and community integration after burn injury – A Burn Model System National Database Study

    IntroductionCommunity health is affected by transportation access, an underexplored factor in burn outcomes. Therefore, this study aimed to examine the associations of transportation mode with health service utilization and social community integration after burn injury.MethodsA multicenter burn longitudinal dataset was analyzed from 2018 to 2024. Self-reported transportation modality was examined ...
  • Interagency TBI Conference

    Conference
  • Publications

    Teen Perspectives in Burn Recovery: Coproduction for a New Outcome Tool Measuring Interpersonal Relationships and Social Interactions

    Adolescence is a period of major developmental and social change, and when coupled with the challenges of burn injuries, it can significantly affect social interactions and relationships. To develop a burn-specific outcome measure for teens, the Teen-Aged Life Impact Burn Recovery Evaluation (TA-LIBRE12-19) was created. This study details the qualitative ...
  • Publications

    What gets measured gets done - Why chronic conditions after burn injury must be measured

  • Publications

    Leveraging Language Embeddings from EMA Surveys to Predict Perceived Social Isolation among Stroke Survivors

    Perceived social isolation (PSI) significantly affects the emotional well-being of stroke survivors, necessitating effective monitoring and prediction for timely, targeted interventions. While Ecological Momentary Assessment (EMA) has been increasingly used to identify precursor characteristics of PSI, existing prediction methods rely on handcrafted features, which often fail to capture the semantic ...
  • Publications

    Inpatient rehabilitation experiences and preparedness for discharge: Perspectives of people with spinal cord injuries, care partners, and rehabilitation clinicians

    Purpose/Objective: Describe and compare the perspectives of people with spinal cord injuries (SCIs), care partners, and rehabilitation clinicians regarding rehabilitation experiences, preparation for discharge, and community integration. Research Method/Design: We recruited people with SCI, care partners, and rehabilitation clinicians through SCI Model Systems contacts and other sources. We sought variations in ...
  • Publications

    Employment Stability for People with Traumatic Brain Injury Predicted by Vocational Rehabilitation, Rurality, and Transportation Independence

    ObjectiveTo characterize the effects of vocational rehabilitation (VR), rural residence, and transportation independence on patterns of employment in the first 10 years after traumatic brain injury (TBI).DesignObservational study using longitudinal data from TBI Model Systems National Database (TBIMS-NDB) collected at the time of TBI, and 1, 2, 5, and 10 ...

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Disclaimer

Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.