Unite 2 Fight Paralysis' mission is to unite and empower the international SCI community to cure paralysis through advocacy, education, and support for research.
Study examined how demographic and injury characteristics identify satisfaction with life (SWL) following spinal cord injury (SCI) and assessed the differential effects of a wellness intervention by baseline SWL groups. Seventy-two individuals with SCI were randomized to an intervention group or control group. The intervention aimed to increase self-efficacy, and ...
Study identified demographic and clinical factors associated with loss to follow-up (FU) at post-injury years 1 to 35 among 25,871 people with spinal cord injury (SCI) enrolled in the National Spinal Cord Injury Database. Loss to FU was defined as no research information obtained from participants who were eligible ...
Study examined the role of race/ethnicity on data quality and response completeness among individuals enrolled in a longitudinal spinal cord injury (SCI) database. This study included 7,507 adults (5,483 non-Hispanic whites, 1,414 non-Hispanic blacks, and 610 Hispanics) from 19 SCI Model Systems centers, who returned for follow-up between 2001 ...
Article describes the development and psychometric evaluation of patient-reported outcome measures that assess pain interference and pain behavior after spinal cord injury (SCI). These measures include the Spinal Cord Injury - Quality of Life (SCI-QOL) Pain Interference item bank, SCI-QOL Pain Interference short form, and SCI-QOL Pain Behavior scale. ...
Study assessed the efficacy of a web-based transfer training module on the performance of independent wheelchair transfers immediately after training and after a 1- to 2-day delay and identified subject characteristics that predict improvements in transfer ability after training. Seventy-one manual and power wheelchair users who could transfer independently ...
Study compared baseline characteristics and neurological and functional outcomes for patients with penetrating spinal cord injury (PSCI) and blunt spinal cord injury (BSCI). Data for 5,316 participants with BSCI and 1,062 with PSCI were extracted from the Spinal Cord Injury Model Systems database from January 1994 to January 2015. ...
United Spinal Association’s mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D), and is committed to advancing public policies that lead to greater civil rights and independence for people with disabilities.
The SCI guide is assembled by the New England Regional Spinal Cord Injury Center (NERSCIC) at Boston Medical Center, who has assembled a team of people with SCI to review and rate the top spinal cord injury websites.
The mission of SCOPE mission is to enhance the development of clinical trial and clinical practice protocols that will accurately validate therapeutic interventions for spinal cord injury (SCI) leading to the adoption of improved best practices.
Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of veterans of the armed forces who have experienced spinal cord injury or dysfunction.
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
FacingDisability is designed to provide Internet-based information and support for people with spinal cord injuries and the members of their families. The website has more than 1,000 videos of family members answering real-life questions about how they cope with a spinal cord injury.
Disability.gov is the federal government website for comprehensive information on disability programs and services nationwide.You can find thousands of resources on topics, such as applying for Social Security disability benefits, finding a job and paying for accessible housing, to name just a few. ...
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.