Short Tilte:Spinal muscular atrophy type 1 quality of life
Journal:American Journal of Physical Medicine and Rehabilitation
Year, Volume, Issue, Page(s):03, 82, 2, 137-142
Study compared healthcare professionals' assessment of the quality of life of children with spinal muscular atrophy type 1 to that of the children's caregivers. Generally, caregivers reported a significantly more positive assessment of QOL than did the clinicians.