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Accession No.:



Spinal Cord (formerly Paraplegia)

Year, Volume, Issue, Page(s):

, 54, 11, 1036-1046

Publication Website:


Article describes the development of the International Spinal Cord Injury Pain Extended Data Set (ISCIPEDS) to guide the assessment and treatment of pain after spinal cord injury (SCI). Members of the interdisciplinary working group recommended four assessment domains for the ISCIPEDS: (1) pain symptoms, including variables related to pain type, temporal course, severity, unpleasantness, tolerability of pain and questionnaires assessing pain type and symptom severity; (2) sensory signs to detect and quantify sensory abnormalities commonly associated with neuropathic pain, including dynamic mechanical and thermal allodynia, and hyperalgesia; (3) treatments (ongoing and past 12 months); and (4) psychosocial factors and comorbid conditions. The ISCIPEDS was designed to be used together with the International SCI Pain Basic Data Set and provide a brief yet thorough assessment of domains related to chronic pain in individuals with SCI. The data set includes pain-relevant self-reported assessments, questionnaires and sensory examinations. The recommendations were based on: (1) their relevance to individuals with SCI and chronic pain, (2) the existence of published findings supporting the utility of the selected measures for use in individuals with SCI, and to the greatest extent possible (3) their availability in the public domain free of charge.


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