Health care self-advocacy strategies for negotiating health care environments: Analysis of recommendations by satisfied consumers with SCI and SCI practitioners

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Abstract:

Study identified strategies for self-advocacy and navigating the health care system as perceived by individuals with spinal cord injury (SCI) who report high satisfaction with their primary care, compared to the perceptions of SCI practitioners. Data were obtained through interviews conducted with 7 satisfied consumers with SCI and 4 experienced SCI practitioners. Analysis of consumer interview transcripts revealed 3 primary domains, with associated subdomains, against which practitioner data were compared. Consumers were asked about their experiences and recommendations for navigating primary care visits and equipment needs and, based on this, to recommend what they considered the most important self-advocacy skills and navigation strategies overall. Consumers recommended the most effective self-advocacy skills for health care settings, which also tended to be endorsed by SCI rehabilitation practitioners.

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