Study examined the reliability and validity of the Life Impact Burn Recovery Evaluation (LIBRE) Profile. The LIBRE Profile measures six areas of social participation: Relationships with Family and Friends, Social Interactions, Social Activities, Work and Employment, Romantic Relationships, and Sexual Relationships. The validity of the LIBRE Profile was examined by administering the six LIBRE Profile scales as well as legacy measures that assessed similar constructs to 250 burn survivors. Pearson correlations between the LIBRE Profile scales and the scores on the same-domain and cross-domain legacy measures were calculated to evaluate convergent and divergent validity. The LIBRE Profile scales were then administered a second time, seven to ten days after the first administration, to a sample of adult burn survivors to evaluate test-retest reliability. Repeatability coefficients, standard error of measurement (SEM), and minimal detectable change (MDC90 and MDC95) were calculated to establish the threshold beyond which the amount of change observed across an episode of care cannot be explained as measurement error. For reliability, the repeatability coefficients ranged from 7.31 to 9.27 and SEMs ranged from 2.62 to 3.39 for all six scales. MDC90 values ranged from 6.08 to 7.86 points, and MDC95 values ranged from 7.26 to 9.40 points. All correlations between the LIBRE Profile scales and legacy measures were significant and in the expected directions for both convergent and divergent validity. This study provided evidence for the reliability and validity of the LIBRE Profile as a patient-reported outcome measure that evaluates exclusively the social participation of burn survivors.
Author(s):
Dore, Emily C.|Marino, Molly|Ni, Pengsheng|Lomelin-Gascon, Julieta|Sonis, Lily|Amaya, Flor|Ryan, Colleen M.|Schneider, Jeffrey C.|Jette, Alan M.|Kazis, Lewis E.|
