Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the preschool1-5 life impact burn recovery evaluation (LIBRE) profile

Model System:

Burn

Reference Type:

Journal article

Accession No.:

J89132

Journal:

Burns

Year, Volume, Issue, Page(s):

2021 , 47, 7, 1511-1524

Publication Website:

Abstract:

Study developed item pools for a parent-reported, burn-specific patient-reported outcomes measure comprised of questions appropriate for children aged 1 to 5 years with burn injuries. Item development was based on a framework provided by previous work to develop the Preschool Life Impact Burn Recovery Evaluation (LIBRE) Conceptual Model. The Preschool LIBRE Conceptual Model work established four sub-domains of functioning for children aged 1 to 5 years with burns. Item development involved a systematic literature review, a qualitative item review process with clinical experts, and parent cognitive interviews. Four item pools were established: (1) communication and language development; (2) physical functioning; (3) psychological functioning and (4) social functioning for preschool-aged children with burn injuries. Researchers selected and refined candidate items, recall periods, survey instructions, and response option choices through clinical and parental feedback during the qualitative review and cognitive interview processes. The item pools are currently being field-tested as part of the process to calibrate and validate the Preschool1-5 LIBRE Computer Adaptive Test (CAT) Profile. a parent-reported outcome measure evaluating recovery from burns among children 1 to 5 years of age.

Author(s):