Development of the school-aged life impact burn recovery evaluation (SA-LIBRE5–12) profile: A conceptual framework

Model System:

Burn

Reference Type:

Journal article

Accession No.:

J88914

Journal:

Journal of Burn Care And Research (formerly Journal of Burn Care & Rehabilitation)

Year, Volume, Issue, Page(s):

2021 , 42, 6, 1067-1075

Publication Website:

Abstract:

Study developed a conceptual framework to measure pediatric burn outcomes in survivors aged 5 to 12 years as a part of the School-Aged Life Impact Burn Recovery Evaluation Computer Adaptive Test (SA-LIBRE5–12 CAT) development. a systematic literature review was conducted, guided by the International Classification of Functioning—Child and Youth and domains in the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire5–18. Interviews were conducted with eight parents and seven clinicians to identify important domains in child recovery. One clinician focus group with four clinicians was completed to identify gaps in the preliminary framework, and semiweekly expert consensus meetings were conducted with three experts to solidify the framework. Qualitative data were analyzed by grounded theory methodology. Three major outcome domains emerged: (1) physical functioning: fine motor and upper extremity, gross motor and lower extremity, pain, skin symptoms, sleep and fatigue, and physical resilience; (2) psychological functioning: cognitive, behavioral, emotional, resilience, and body image; and (3) family and social functioning: family relationships, and parental satisfaction, school, peer relations, and community participation. The framework will be used to develop item banks for a CAT-based assessment of school-aged children’s health and developmental outcomes, which will be designed for clinical and research use to optimize interventions, personalize care, and improve long-term health outcomes for burned children.

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