QUICK REVIEW: A CONSUMER DIGEST OF MODEL SYSTEM RESEARCH
The Burn Model Systems Outcome Measures: A Content Analysis Using the International Classification of Functioning, Disability, and Health
What is the study about?
The researchers used a standardized linking technique to link concepts of the Burn Model Systems (BMS) questionnaires to the International Classification of Functioning, Disability and Health (ICF) and the ICF Child and Youth (ICF CY) version. The ICF(-CY) is a framework developed by the World Health Organization to classify and describe all aspects of human functioning. The researchers also determined the perspective of each BMS question (health status, quality of life (QOL) or environmental). The following instruments were linked: BMS initial and follow-up age 0–4 years, initial and follow-up 5–13, initial and follow-up 14–18, and adult follow-up.
What did the study find?
The majority of BMS concepts were linked to the body functions component (42%) followed by the activities and participation component (34%). Although these components were represented often, ICF(-CY) chapter and category distribution varied widely from questionnaire to questionnaire. For example, concepts covered in the age 5-13 years questionnaire were not the same concepts covered in the age 14-18 years, therefore the same concepts are not assessed as a person ages with burn injury. The components body structures and environmental factors were the least represented, 12% and 13% respectively. The overall perspective of the BMS questionnaires was health status. The researchers suggested that future editions of the BMS questionnaires include pertinent concepts from all ICF components that are followed through time.
Who participated in the study?
This study was a content analysis of Burn Model Systems (BMS) National Database. The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Administration for Community Living, U.S. Department of Health and Human Services funds BMS.
How was the study conducted?
Each meaningful concept in the BMS questionnaires was linked to the ICF (-CY) by two experienced ICF coders. One linked all BMS concepts. The second linked 10% of concepts to establish interrater reliability. Kappa statistics and percentage agreement were used to determine level of agreement.
Osborne, C.L., Petersson, C., Graham, J.E., Meyer, W.J., Simeonsson, R.J., Suman O.E., & Ottenbacher, K.J. (2016). The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health. Disability & Rehabilitation, http://dx.doi.org/10.1080/09638288.2016.1239767.
The contents of this quick review were developed under a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90DP0012-01-00). However, these contents do not necessarily represent the policy of Department of Health and Human Services, and you should not assume endorsement by the Federal Government.
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