Model System:

Burn

Reference Type:

Journal

Accession No.:

J75447

Journal:


Journal of Burn Care And Research (formerly Journal of Burn Care & Rehabilitation)

Year, Volume, Issue, Page(s):

, 38, 1, e377-e383

Publication Website:

Abstract:

Article describes the development of a pool of items addressing the social impact of burn injuries in adults to create a self-reported computerized adaptive test based on item response theory. The authors conducted a comprehensive literature review to identify preexisting items in other self-reported measures and used data from focus groups to create new items. The authors classified items using a guiding conceptual framework on social participation. The authors conducted cognitive interviews with burn survivors to assess clarity and interpretation of each item; an initial pool of 276 items was reduced to 192 items after cognitive evaluation by experts and burn survivors. The 192 items represent 7 domains and reflect the unique experience of burn survivors within these important areas of social participation: work, recreation and leisure, relating to strangers, romantic, sexual, family, and informal relationships. Additional item content that crossed domains included using self-comfort and others’ comfort with clothing, telling one’s story, and sense of purpose. The item pool that emerged from this work will lead to developing the Life Impact Burn Recovery Evaluation profile, a self-reported outcome measure.

Author(s):


Marino, Molly, Soley-Bori, Marina, Jette, Alan M., Slavin, Mary D., Ryan, Colleen M., Schneider, Jeffrey C., Acton, Amy, Amaya, Flor, Rossi, Melinda, Soria-Saucedo, Rene, Resnik, Linda, Kazis, Lewis E.

Participating Centers: