Journal:Journal of Burn Care And Research (formerly Journal of Burn Care & Rehabilitation)
Year, Volume, Issue, Page(s):16, 37, 6, e569-e578
Article describes the development and validation of a conceptual framework for understanding the social impact of burn injuries in adults, based on the International Classification of Functioning, Disability and Health (ICF). A comprehensive literature review and consultations with clinical experts and burn survivors were performed to identify social life areas impacted by burn injury. Focus groups with burn survivors and clinicians were conducted to inform and validate the framework. Transcripts were coded using grounded theory methodology. The ICF was chosen to ground the content model. The primary construct identified was social participation, which contains two concepts: societal role and personal relationships. The subdomains chosen for item development were work, recreation and leisure, relating with strangers, and romantic, sexual, family, and informal relationships. Qualitative results strongly suggest that the conceptual model fits the constructs for societal role and personal relationships with the respective subdomains. This conceptual framework has guided the implementation of a large-scale calibration study currently underway, which will lead to a computerized adaptive test for monitoring the social impacts of burn injuries during recovery.