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Model Systems Knowledge Translation 
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SCI Publications

Publication Year
2026

Knowledge of and adherence to the Dietary Guidelines for Americans by individuals with chronic spinal cord injuries and disorders

Objective: Assess knowledge of and adherence to DGA food group recommendations and their associations and evaluate beliefs about whether individuals with SCI/D should follow the same guidelines as those without SCI/D, and how these beliefs relate to adherence.Design: Cross-sectional survey.Setting: National Veterans Health Administration SCI/D Centers, Midwest Regional SCI Model System of Care, ...
Midwest Regional Spinal Cord Injury Care System
South Florida SCIMS
Publication Year
2026

Development and content validity of a nutrition knowledge questionnaire for individuals living with spinal cord injuries and disorders

ObjectivesIndividuals with spinal cord injuries and disorders (SCI/D) experience several chronic and SCI-specific secondary health complications that are influenced by nutrition, which is a modifiable risk factor. Improving nutritional knowledge is essential to support healthy dietary behaviors, yet no validated tool exists in this population. This study describes the development ...
Midwest Regional Spinal Cord Injury Care System
South Florida SCIMS
Publication Year
2026

Inpatient rehabilitation experiences and preparedness for discharge: Perspectives of people with spinal cord injuries, care partners, and rehabilitation clinicians

Purpose/Objective: Describe and compare the perspectives of people with spinal cord injuries (SCIs), care partners, and rehabilitation clinicians regarding rehabilitation experiences, preparation for discharge, and community integration. Research Method/Design: We recruited people with SCI, care partners, and rehabilitation clinicians through SCI Model Systems contacts and other sources. We sought variations in ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2026

Evolving Demographics and Injury Characteristics of US Traumatic Spinal Cord Injury, 1972-2024

Objectives: To examine demographic and injury characteristics of new traumatic spinal cord injury (tSCI) cases from 1972 to 2024, contextualized by US population trends.Design: Cross-sectional analysis of a longitudinal database.Setting: Thirty-one Spinal Cord Injury Model Systems (SCIMS) centers throughout the United States.Participants: A total of 37,866 SCIMS database participants grouped into 6 injury cohorts ...
Midwest Regional Spinal Cord Injury Care System
UAB Spinal Cord Injury Model System (UAB-SCIMS)
Minnesota Regional Spinal Cord Injury Model System
Publication Year
2026

Contextualizing Employment Outcomes After Spinal Cord Injury With Novel Area-Level Economic Measures: A Cross-Sectional Analysis of the National Spinal Cord Injury Model Systems Database

Objective:To investigate the association of area-level economic characteristics with employment outcomes in a sample of participants in the national Spinal Cord Injury Model Systems (SCIMS) database.Design:Secondary analysis of cross-sectional survey data collected for the SCIMS database linked to administrative data from the 2019 American Community Survey (ACS) 5-year estimates.Setting:Community.Intervention:Not applicable.Participants:People ...
Northern New Jersey Spinal Cord Injury System
Rocky Mountain Regional Spinal Injury System
Baylor Scott and White Spinal Cord Injury Model System
UAB Spinal Cord Injury Model System (UAB-SCIMS)
Publication Year
2026

Leveraging Language Embeddings from EMA Surveys to Predict Perceived Social Isolation among Stroke Survivors

Perceived social isolation (PSI) significantly affects the emotional well-being of stroke survivors, necessitating effective monitoring and prediction for timely, targeted interventions. While Ecological Momentary Assessment (EMA) has been increasingly used to identify precursor characteristics of PSI, existing prediction methods rely on handcrafted features, which often fail to capture the semantic ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2026

Predictors of Complications and Recurrence After Pressure Injury Reconstruction in Spinal Cord Injury: A Systematic Review and Meta-Analysis

Spinal cord injury (SCI) predisposes patients to pressure injuries (PIs) often requiring surgery. Multiple factors influence postoperative complications and recurrence, though their associations remain unclear. We performed a PRISMA-guided systematic review and meta-analysis to assess predictors of acute postoperative complications and PI recurrence in SCI patients undergoing surgery. PubMed, Scopus ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2026

Oral Health Problems in Individuals Living With Spinal Cord Injuries and Disorders

ObjectiveTo identify factors associated with oral health problems in individuals with spinal cord injuries and disorders (SCI/D).DesignCross-sectional survey conducted in 2024-2025.Setting/ParticipantsVeterans and civilians with SCI/D from Veterans Health Administration and private sector organizations.Main Outcomes MeasuresOral health problems, chronic conditions, secondary complications, and psychosocial health.ResultsThe sample (n=370) had a mean age ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2026

Food avoidance behaviors in individuals living with spinal cord injuries and disorders

Purpose/Objective: Research on food avoidance behaviors in individuals with chronic spinal cord injuries and disorders (SCI/D) is scarce. The objective was to assess food avoidance, reasons, and associated variables in persons with chronic SCI/D. Research Method/Design: A cross-sectional survey was conducted. Bivariate and multivariable analyses identified variables associated with food ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2026

Qualitative insights into government financial assistance use after spinal cord injury

ObjectiveTo identify the types of government financial assistance programs accessed by individuals and their families after spinal cord injury (SCI) and user experiences.DesignQualitative analysis of data collected from focus groups conducted during the initial phase of a mixed-methods questionnaire development project.SettingTen 1-hour online focus groups held via Zoom for Healthcare ...
Northern New Jersey Spinal Cord Injury System
Rocky Mountain Regional Spinal Injury System
Southern California Spinal Cord Injury Model System
Southeastern Regional Spinal Cord Injury Model System
Minnesota Regional Spinal Cord Injury Model System
Michigan Spinal Cord Injury Model System
Virginia Traumatic Brain Injury Model System
North Texas Traumatic Brain Injury Model System
Publication Year
2026

Rethinking randomized controlled trials: Using the multiphase optimization strategy framework to optimize multicomponent interventions in rehabilitation psychology

Multicomponent biobehavioral and psychosocial interventions in rehabilitation psychology have traditionally employed a “treatment package” approach, which bundles multiple components into a single intervention. While this method can be practical, it often fails to provide detailed insights into the effectiveness of each component within the package. This lack of granularity can ...
Minnesota Regional Spinal Cord Injury Model System
Publication Year
2023

Interpersonal Violence Against Women With Spinal Cord Injury: Adding Insult to Injury

Texas Model Spinal Cord Injury System has published a study with the American Spinal Injury Association titled Interpersonal Violence Against Women With Spinal Cord Injury: Adding Insult to Injury. This study seeks to address the understudied and underserved population of women with SCI in relation to their experience with interpersonal ...
Texas Model Spinal Cord Injury System
Publication Year
2023

Cost-effectiveness analysis of overground robotic training versus conventional locomotor training in people with spinal cord injury

Study estimated the cost-effectiveness of overground robotic locomotor training versus conventional locomotor training following spinal cord injury (SCI) by injury status (complete versus incomplete). A probabilistic cost-effectiveness analysis was conducted using a prospective, practice-based cohort from four participating SCI Model System sites. The outcome measures included the calculation of quality ...
Publication Year
2022

Walking and balance outcomes are improved following brief intensive locomotor skill training but are not augmented by transcranial direct current stimulation in persons with chronic spinal cord injury

Study investigated whether a brief moderate-intensity locomotor-related motor skill training (MST) circuit, with and without transcranial direct current stimulation (tDCS), improved walking and balance outcomes in people with motor-incomplete spinal cord injury (MISCI). In addition, researchers examined potential differences between within-day (online) and between-day (offline) effects of MST. Twenty-six adults ...
Publication Year
2022

Validation of the spinal cord injury-functional index for use in community-dwelling individuals with SCI

Study evaluated the psychometric properties of the Spinal Cord Injury-Functional Index (SCI-FI) instruments in a community-dwelling sample. A total of 269 individuals recruited from 6 SCI Model Systems sites completed computer adaptive test and short-form versions of 4 SCI-FI/Capacity (C) banks (i.e., Ambulation, Basic Mobility, Fine Motor, Self-Care) and 1 ...
Publication Year
2022

Utilization of complementary and integrative healthcare by people with spinal cord injury in the spinal cord injury model systems: A descriptive study

Study examined the use of complementary and integrative healthcare (CIH) by people with spinal cord injury (SCI). Data were obtained from 411 people enrolled in five SCI Model Systems (SCIMS) centers across the United States who completed their SCIMS follow-up interview between January 2017 and July 2019. Participants completed a ...
Publication Year
2022

Using implementation science to guide the process of adapting a patient engagement intervention for inpatient spinal cord injury/disorder rehabilitation

Study examined the process of adapting an evidence-based patient engagement intervention, enhanced medical rehabilitation (E-MR), for inpatient spinal cord injury/disease (SCI/D) rehabilitation using an implementation science framework. The collaborative intervention planning framework was applied and included a community advisory board (CAB) in an intervention mapping process. Seven stakeholders from inpatient ...
Publication Year
2022

Ultrasound-guided platelet-rich plasma injection for the treatment of recalcitrant rotator cuff disease in wheelchair users with spinal cord injury: A pilot study

Study tested the safety and treatment effect of an ultrasound-guided platelet-rich plasma (PRP) injection for shoulder pain in wheelchair users with spinal cord injury (SCI). Six wheelchair users (3 paraplegia, 3 tetraplegia) who had chronic shoulder pain due to rotator cuff disease received ultrasound-guided PRP injection into pathological shoulder tendons, ...
Publication Year
2022

Treatments perceived to be helpful for neuropathic pain after traumatic spinal cord injury: A multicenter cross-sectional survey study

Study evaluated the perceived helpfulness of pharmacological and non-pharmacological interventions and their combinations for neuropathic pain (NeuP) and subcategories of NeuP after spinal cord injury (SCI). Three hundred ninety-one individuals at least one year post traumatic SCI were recruited from six SCI Model System centers. A telephone survey was conducted ...
Publication Year
2022

The relationship of secondary and chronic health conditions with emergency department visits and related hospitalizations among people with traumatic spinal cord injury

Study identified secondary and chronic health conditions associated with self-reported emergency department (ED) visits and ED-related hospitalizations among people with traumatic spinal cord injury (SCI). Data collected from 648 adults with chronic traumatic SCI through their Form II annual follow-up within the SCI Model System, as well as self-reported ED ...

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Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.