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Model Systems Knowledge Translation 
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SCI Publications

Publication Year
2015

Global outcome trajectories after TBI among survivors and non-survivors: A National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems Study

Study compared long-term functional outcome trajectories of individuals with traumatic brain injury (TBI) who survive with those who expire more than 5 years after injury, using individual growth curve analysis. Data on the Glasgow Outcome Scale-Extended (GOS-E) and Disability Rating Scale (DRS) were obtained for individuals 16 years and older ...
Publication Year
2015

Information/education page: Evaluating your pressure prevention plan: A problem-solving worksheet for people with spinal cord injury and their health care providers

Article provides a worksheet to help people with spinal cord injury identify challenges they face when trying to prevent pressure ulcers and work with their health care providers to address those challenges. Instructions and links to more information about preventing pressure ulcers are also included. ...
Rocky Mountain Regional Spinal Injury System
Northern New Jersey Spinal Cord Injury System
Southeastern Regional Spinal Cord Injury Model System
Publication Year
2014

Perfect--the enemy of good

Article presents a counter-commentary to the commentary (see accession number J68562) about their original article (accession number J68561) addressing the mechanical reliability of power wheelchairs (PWCs). The commentary concludes that producing a strong study that compares PWCs will be difficult and of limited value, but offers no call for better, ...
Publication Year
2014

Life Expectancy following Inpatient Rehabilitation for Traumatic Brain Injury in the United States. J Neurotrauma 2014;31:1-9, ePub ahead of print

Publication Year
2014

The uniform data system for medical rehabilitation: Report of follow-up information on patients discharged from inpatient rehabilitation programs in 2000-2010

Study presents yearly aggregated summaries of rehabilitation outcomes at admission, discharge, and follow-up from a national sample of patients receiving inpatient medical rehabilitation for stroke, traumatic brain injury, lower-extremity fracture, lower-extremity joint replacement, traumatic spinal cord injury (SCI), or debility. Data were obtained from more than 300 inpatient rehabilitation ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2014

Predictors of Participation Enfranchisement following Spinal Cord Injury: The Mediating Role of Depression and Moderating Role of Demographic and Injury Characteristics

Study examined the mediating effects of depressive symptoms on the relationships among employment, grief, depression treatment, and participation enfranchisement after spinal cord injury (SCI). It also examined the moderating role of demographic and injury characteristics, including sex, race, marital status, education, and injury level, and completeness on these relationships. Participation ...
Publication Year
2014

Development of a Wheelchair Maintenance Training Program and Wheelchair Maintenance Questionnaire

Publication Year
2014

Development and Characterization of a Pathway Measurement Tool (PathMeT)

Publication Year
2014

Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form.

Article describes the development and psychometric properties of the Spinal Cord Injury-Quality of Life (SCI-QOL) item bank and computer adaptive test (CAT) to assess the effects of stigma on health-related quality of life in individuals with spinal cord injury (SCI). The project included grounded-theory based qualitative item development methods, ...
Michigan Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Northern New Jersey Spinal Cord Injury System
Publication Year
2014

Long-term Survival after Traumatic Brain Injury. Part I: External Validity of Prognosis Models. Arch Phys Med Rehabil 2015;96:994-9

Publication Year
2014

The association of assistive mobility devices and social participation in people with spinal cord injuries

Study examined the relationship between the type of mobility devices used and social participation in wheelchairs users who have spinal cord injuries (SCI). It was hypothesized that using wheelchairs with external power and driving a modified vehicle (MV), with or without driving in a wheelchair, facilitates social participation for ...
Kentucky Regional Spinal Cord Injury Model System
Publication Year
2014

The association of assistive mobility devices and social participation in people with spinal cord injuries.

Study examined the relationship between the type of mobility devices used and social participation in wheelchairs users who have spinal cord injuries (SCI). It was hypothesized that using wheelchairs with external power and driving a modified vehicle (MV), with or without driving in a wheelchair, facilitates social participation for ...
Publication Year
2014

Depression, pain intensity, and interference in acute spinal cord injury

Study investigated the independent contributions of pain intensity and pain interference to depression in individuals undergoing acute inpatient rehabilitation for traumatic spinal cord injury (SCI). Participants completed a survey that included measures of depression, pain intensity, and pain interference (in the domains of general activity, mood, mobility, relations with ...
Michigan Spinal Cord Injury Model System
Publication Year
2014

Development of a new measurement system to assess HRQOL in individuals with Spinal Cord Injury

Publication Year
2014

Development of a Scoring Model for the Early Prediction of Heterotopic Ossification in Seriously Burned Adults: a NIDRR Burn Model System Database Analysis

Publication Year
2014

Measuring Resilience after Spinal Cord Injury: Development, Validation and Psychometric Characteristics of the SCI-QOL Resilience Item Bank and Short Form

Article describes the development and psychometric properties of the Spinal Cord Injury - Quality of Life (SCI-QOL) Resilience item bank and short form. Using a mixed-methods design, a resilience item bank was develop and tested through the use of focus groups with individuals with SCI and clinicians with expertise ...
Michigan Spinal Cord Injury Model System
Northern New Jersey Spinal Cord Injury System
Publication Year
2014

Provider and System-Level Factors that Create and Perpetuate Healthcare Disparities for Individuals with Spinal Cord Injury

Publication Year
2014

Methodology for the development and calibration of the SCI-QOL item banks.

Article describes the development and calibration of the Spinal Cord Injury -- Quality of Life (SCI-QOL), a patient-reported outcomes measurement system for individuals with spinal cord injury (SCI). Specifically, the authors detail the methods and results of the five phases of the SCI-QOL development: (1) domain/subdomain selection, (2) item ...
Midwest Regional Spinal Cord Injury Care System
Michigan Spinal Cord Injury Model System
Rocky Mountain Regional Spinal Injury System
Northwest Regional Spinal Cord Injury System
Publication Year
2014

Measuring Positive Affect & Well-Being after Spinal Cord Injury: Development and Psychometric Characteristics of the SCI-QOL Positive Affect & Well-Being Item Bank and Short Form

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Positive Affect and Well-Being (PAWB) item bank and short form. Qualitative feedback from patient and provider focus groups was used to expand on the Neurological Disorders and Quality of Life (Neuro-QOL) positive affect ...
Publication Year
2014

Development and use of a knowledge translation tool: The rehabilitation measures database

Article discusses the development, utilization, and sustainability of the Rehabilitation Measures Database (RMD), a free, web-based searchable database of standardized instruments that was designed to support knowledge translation. It helps clinicians select valid and sensitive instruments for screening patients, monitoring progress, and assessing rehabilitation outcomes. The RMD was developed ...
Midwest Regional Spinal Cord Injury Care System

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Disclaimer

Information on this site is not meant to replace the advice of a medical professional. You should consult your health care provider regarding specific medical concerns or treatment. The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.