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Model Systems Knowledge Translation 
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SCI Publications

Publication Year
2015

Differences in the community built environment influence poor perceived health among persons with spinal cord injury

Study assessed the association between characteristics of the built environment and differences in perceived health among individuals with spinal cord injury (SCI). A secondary analysis was conducted of data collected from 503 people with chronic SCI enrolled in the Spinal Cord Injury Model Systems database. All cases were residents ...
Northern New Jersey Spinal Cord Injury System
Publication Year
2015

Measuring psychological trauma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Psychological Trauma item bank and short form

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Psychological Trauma item bank and short form. Using a mixed-methods design, a Psychological Trauma item bank was developed and tested with patient and provider focus groups and cognitive interviews. A 31-item pool ...
Michigan Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Publication Year
2015

Ultrasonographic Measurement of the Acromiohumeral Distance in Spinal Cord Injury: Reliability and Effects of Shoulder Positioning

Objective: To investigate the reliability of ultrasonographic measurement of acromiohumeral distance (AHD) and the effects of shoulder positioning on AHD among manual wheelchair users (MWUs) with spinal cord injury (SCI) and an able-bodied control group. Methods: Ten MWUs with SCI and 10 able-bodied subjects participated in this study. The ...
University of Pittsburgh Model Center on Spinal Cord Injury
Publication Year
2015

Development and psychometric characteristics of the SCI-QOL pressure ulcers scale and short form

Article describes the development and psychometric characteristics of the Spinal Cord Injury – Quality of Life (SCI-QOL) Pressure Ulcers scale, a self-reported measure of the impact of pressure ulcers on health-related quality of life in individuals with spinal cord injury (SCI). Grounded-theory based qualitative item development methods, large-scale item ...
Michigan Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Rocky Mountain Regional Spinal Injury System
Northern New Jersey Spinal Cord Injury System
Publication Year
2015

Cortical activation during visual illusory walking in persons with spinal cord injury: A pilot study

Study determined the location of cortical activation during a visual illusion walking paradigm, a recently proposed treatment for spinal cord injury (SCI)-related neuropathic pain, in people with SCI compared with able-bodied controls. Three people with paraplegia and 5 able-bodied participants were included in this study. The walking stimuli consisted ...
Publication Year
2015

Measurement of bone: Diagnosis of SCI-induced osteoporosis and fracture risk prediction

Article reviews the biological and structural changes that are known to occur in bone after spinal cord injury (SCI) in the context of promoting future research to prevent or reduce risk of fracture in this population. The authors also review the most commonly used methods for assessing bone after ...
Publication Year
2015

Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL grief and loss item bank and short form

Article describes the development and psychometric properties of the Spinal Cord Injury – Quality of Life (SCI-QOL) Grief and Loss item bank and short form. A literature review guided framework development of grief/loss. New items were created from focus groups. Items were revised based on expert review and patient ...
Michigan Spinal Cord Injury Model System
Northwest Regional Spinal Cord Injury System
Northern New Jersey Spinal Cord Injury System
Publication Year
2015

Relation of abdominal and stool symptoms on PAC-SYM questionnaires to patient sex and anatomic level of neurologic damage in spinal cord injury patients.

Michigan Spinal Cord Injury Model System
Publication Year
2015

Overview of the Spinal Cord Injury - Quality of Life (SCI-QOL) measurement system.

Article describes the background and development of the Spinal Cord Injury -- Quality of Life (SCI-QOL) measurement system, a spinal cord injury (SCI)-specific, patient-reported outcome measure of health-related quality of life (HRQOL) covering physical, emotional, and social domains of functioning. The SCI-QOL was developed using item response theory (IRT) ...
Michigan Spinal Cord Injury Model System
Rocky Mountain Regional Spinal Injury System
Mount Sinai Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Northern New Jersey Spinal Cord Injury System
Rocky Mountain Regional Spinal Injury System
Publication Year
2015

Neural markers of neuropathic pain associated with maladaptive plasticity in spinal cord injury

This study aimed to identify the most effective neural markers of neuropathic pain following spinal cord injury (SCI). A systematic PubMed review was conducted, compiling studies that were published prior to April, 2014 that examined neural markers associated with neuropathic pain after SCI using electrophysiological and neuroimaging techniques. Six ...
Publication Year
2015

Bladder cancer mortality after spinal cord injury over 4 decades

Study estimated bladder cancer mortality in people with spinal cord injury (SCI) compared to the general population. Data and statistics were obtained from the National SCI Statistical Center and the National Center for Health Statistics. The mortality experience of the 45,486 patients with traumatic SCI treated at a SCI ...
Publication Year
2015

Measuring anxiety after spinal cord injury: Development and psychometric characteristics of the SCI-QOL anxiety item bank and linkage with GAD-7

Article describes the development and psychometric characteristics of the Spinal Cord Injury – Quality of Life (SCI-QOL) Anxiety item bank. Grounded-theory based qualitative item development methods were used to develop a calibrated item bank and computer adaptive test (CAT) to assess anxiety symptoms in individuals with spinal cord injury ...
Michigan Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Publication Year
2015

Differential impact and use of a telehealth intervention by persons with MS or SCI

Study compared outcomes and patterns of engaging with a telehealth intervention (CareCall) by adult wheelchair users with severe mobility limitations. A secondary analysis was conducted of data from a pilot randomized controlled trial with 106 participants with spinal cord injury (SCI) and 36 participants with multiple sclerosis (MS). General ...
Publication Year
2015

Muscle activation varies with contraction mode in human spinal cord injury

Study examined muscle activation during single and repeated isometric, concentric, and eccentric knee extensor (KE) maximal voluntary contractions (MVCs) to better understand volitional force generation after chronic incomplete spinal cord injury (SCI). Torque and electromyographic (EMG) activity were recorded during single and repeated isometric and dynamic KE MVCs in ...
Midwest Regional Spinal Cord Injury Care System
Publication Year
2015

Tapering opioid prescriptions and reducing polypharmacy for inpatients with spinal cord injury at Rancho Los Amigos National Rehabilitation Center

Article discusses the hospital-wide changes implemented to eliminate opioid overuse and reduce polypharmacy in spinal cord injury (SCI) inpatients at Rancho Los Amigos National Rehabilitation Center (RLANRC). An interdisciplinary ad hoc committee of clinicians was assembled to ensure the safety of patients, educate patients and providers to the danger ...
Southern California Spinal Cord Injury Model System
Publication Year
2015

Reliability and validity of the capabilities of upper extremity test (CUE-T) in subjects with chronic spinal cord injury

Study examined the reliability and validity of the Capabilities of Upper Extremity Test (CUE-T), a measure of functional limitations in the arm and hand, in patients with chronic tetraplegia. Data were obtained from 50 subjects (36 male/14 female) with chronic stable spinal cord injury (SCI). Test-retest reliability was examined ...
Publication Year
2015

Functional ability level development and validation: Providing clinical meaning for spinal cord injury functional index scores

Study developed and evaluated functional ability levels for the Spinal Cord Injury Functional Index (SCI-FI) using calibration and reliability samples. The SCI-FI measures activity limitations in 5 domains: basic mobility, ambulation, wheelchair mobility, self-care, and fine motor function. SCI-FI data were obtained from 1,124 adults with traumatic spinal cord ...
Michigan Spinal Cord Injury Model System
Rocky Mountain Regional Spinal Injury System
Mount Sinai Spinal Cord Injury Model System
Midwest Regional Spinal Cord Injury Care System
Northern New Jersey Spinal Cord Injury System
Publication Year
2015

The effect of a liner on the dispersion of sacral interface pressures during spinal immobilization

Study assessed sacral interface pressure and sensing area in healthy volunteers on a spine board and the effects of a gel pressure dispersion liner. Sacral pressure ulcers are a significant problem following spinal cord injury and are felt to be in part due to the high interface pressures generated ...
Northeast Ohio Regional Spinal Cord Injury System
Publication Year
2015

Information/education page: Evaluating your pressure prevention plan: A problem-solving worksheet for people with spinal cord injury and their health care providers

Article provides a worksheet to help people with spinal cord injury identify challenges they face when trying to prevent pressure ulcers and work with their health care providers to address those challenges. Instructions and links to more information about preventing pressure ulcers are also included. ...
Rocky Mountain Regional Spinal Injury System
Northern New Jersey Spinal Cord Injury System
Southeastern Regional Spinal Cord Injury Model System
Publication Year
2015

Modifications in wheelchair propulsion technique with speed

Study determined how individual manual wheelchair users with paraplegia modify propulsion mechanics to accommodate expected increases in reaction forces (RFs) generated at the pushrim with self-selected increases in wheelchair propulsion (WCP) speed. Repetitive loading of the upper-limb joints during manual WCP has been identified as a factor that contributes ...
Southern California Spinal Cord Injury Model System

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  • 1996 (26)
  • 1997 (32)
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  • 2018 (21)
  • 2019 (14)
  • 2020 (10)
  • 2021 (4)
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Participating Centers

  • Frazier Rehabilitation and Neuroscience Spinal Cord Injury Model System (3)
  • Indiana Traumatic Brain Injury Model System (1)
  • Kentucky Regional Spinal Cord Injury Model System (7)
  • Michigan Spinal Cord Injury Model System (130)
  • Midwest Regional Spinal Cord Injury Care System (49)
  • Missouri Model Spinal Cord Injury System (28)
  • Mount Sinai Spinal Cord Injury Model System (34)
  • National Capital Spinal Cord Injury Model System (3)
  • National Data and Statistical Center for the TBI Model Systems (3)
  • National SCI Statistical Center (30)
  • New England Spinal Center (13)
  • Northeast Ohio Regional Spinal Cord Injury System (18)
  • Northern New Jersey Spinal Cord Injury System (101)
  • Northern New Jersey Traumatic Brain Injury System (1)
  • Northwest Regional Burn Model System (1)
  • Northwest Regional Spinal Cord Injury System (47)
  • NWestSCI (3)
  • Rocky Mountain Regional Spinal Injury System (84)
  • Southeastern Michigan Traumatic Brain Injury System (1)
  • Southeastern Regional Spinal Cord Injury Model System (55)
  • Southern California Spinal Cord Injury Model System (42)
  • South Florida SCIMS (12)
  • South Florida Traumatic Brain Injury Model System (2)
  • Texas Model Spinal Cord Injury System (9)
  • TIRR Memorial Hermann/Baylor College of Medicine/UTHealth Collaborative Traumatic Brain Injury Model Systems (3)
  • UAB Traumatic Brain Injury Model System (2)
  • University of Pittsburgh Model Center for Traumatic Brain Injury (1)
  • University of Pittsburgh Model Center on Spinal Cord Injury (74)
  • VCU Model Spinal Cord Injury Center (66)
  • Wisconsin Model Construct for Community Integration in SCI (10)

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The contents of this site were developed under grant number 90DPKT0009 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this website do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the federal government.